Words

Today I had to type some words at work that I did not necessarily like or agree with. The worst part is that they were about my own son. My brother-in-law/boss/attorney is getting ready to file the necessary paperwork for Alan and I to become Davin's legal guardian once he turns 18. (Otherwise, the state could step in and make decisions in his interest.) Davin will be 18 next month, so it needs to be done. The first step is to have our pediatrician sign a physician's affidavit. That is what I typed up today. Tomorrow Davin will go to the doctor. He will see his primary doctor and also one of the other doctors in the practice. It will last about an hour.

Today, I typed the words..."Davin Hester, an alleged incompetent individual". I didn't like those words. I also didn't like the words that I had to type describing what Davin can't do. I have always hated describing him that way. Can't we just talk about what he can do and what he is like? No, not for this. We just stick to the big facts. He is non-ambulatory, non-verbal, can not feed himself, wheelchair-bound and requires 24 hour a day care and his parents to make decisions for him. Does this sound like Davin to you? It doesn't sound like him to me, either. You know that Davin has his own ideas and likes to make the decisions around here:-) However, I understand the point and I realize we need to stick to the facts. I kept wanting to add things like...but he shows us clearly what he wants to do by finger pointing and eye gazing, but to write those things was not appropriate in this situation.

So, tomorrow I will take my son to the pediatrician, but it will not be a normal appointment. I am trusting that there will not be a whole lot said that will make Davin feel badly about himself. I will talk to Davin about what is going to happen (as I have been) in the morning and prepare him for what is ahead. Who will prepare me? This is hard.

Sometimes I Am A Little Slow

Poor Davin. Maybe this is a reminder to slow down and take the time to figure out what Davin is saying to me. But, it is the morning and I am so busy. Our morning routine is planned out to the minute. No time at all for anything out of the ordinary. I get his first medicine, get his clothes, shoes and boots together, get breakfast ready, move the wheelchair where I need it at the end of the hallway, get Davin dressed, feed him and put his coat on. Done. Not a minute to spare.

Davin has been pointing at something in his closet from time to time for a VERY long time. A couple of times, I thought I knew what he wanted and got that out for later in the day. Several times, I was pretty sure he wanted to wear something specific (maybe after almost 18 years, he is tired of me picking out his clothes???), but after trying to find out what he wanted to wear, I quickly gave up because, did I mention that we have a very tight schedule in the mornings???

Today Alan and I went to a wedding and Bethany and Davin stayed home together. (We try to avoid the whole "babysitting" reference so we don't offend the boy with the razor stubble;-) When we came home, Davin had on a camouflage long sleeve Army fatigue shirt. The real kind like his Uncle Mike wears when he goes to the reserves. We had gotten it for Cheney when he was in a play in the fourth grade, I think. Apparently, when Bethany was getting Davin dressed, he was insistent that he needed something else. She tried and tried to figure out what it was and then she found it..... the shirt.... who knew?

She said that she picked the Army shirt up and Davin was beside himself. When we came home hours and hours later, he was proud as a peacock and just laughed and smiled as we talked about the shirt. Davin even laughed and laughed when I told him that I didn't know that was the shirt he had been wanting to wear for so long. Oye!

When Alan went to get Davin ready for his bath, he nearly had to cut the shirt off of him because it is very much on the small side:-) So, we will be on the hunt for some new fatigues for Davin since he obviously is very set on wearing them. Fortunately for Davin, he has an Uncle Mike who can probably hook him up with some.

A Good Thing

I do not love the fact that Davin has a severe disability. I DO love the fact that at almost 18 years-old, he will still snuggle with his Mom:-) Priceless. Love that boy.

The Correct Attire

About four months ago, my family got a gym membership. Two of my kids started going. They kept asking me and asking me when I was going to start going. I don't want you to think my kids were trying to be mean to me. They knew I had wanted to start going to the gym, but the summer was just not a good time for me to start that. When Davin started back to school a few weeks ago, I started at the gym. I have this adorable partner that goes with me. She is a blondie and rather tall;-) My goal is to go three times a week, but so far, I have only made it two times a week.

I do realize that I do not always look confident when I am doing something new. Sometimes I am laughing at the gym. No one else seems to be having fun. It is a pretty serious place. I always have to read the directions when I go to a new piece of equipment. I do try to read them quickly, though;-) I also realize I do not look like the rest of the people who are working out. Do any of the other people have the upper part of their body thrown over the top of the machine like they are hanging on for dear life? Not really. Do I notice anyone else's head bobbing wildly while they are working out? No. Do other people look like they are going to fall off of the stair climber thing? No. Thankfully the nice man who happened to be smiling when he walked by and looked at me, also got on one down the aisle and then I was able to see how I was supposed to be using it;-)

Hey, I am a beginner. The last time I worked out in a gym was in high school for softball. That has been a while. Give me time.

Today I was talking to Cheney about the gym. He is very proud of me that I have been going and we talked about how he will go with me when he comes home for Thanksgiving. I then told him how someone had asked me a question about his college when they saw me wearing my matching Wheaton College sweatpants and t-shirt. (and frankly I was feeling good!) Cheney asked me why in the world I would be wearing sweats to the gym??? I had no idea why I should not be wearing sweats. Sure, I have not seen a lot of people at the gym wearing sweats, but in 1984, we wore sweats when we worked out. I asked Chey what I was supposed to be wearing at the gym and he informed me (please everyone take note, lest you make a similar mistake) that most people wear some sort of "athletic shorts" to the gym. Well, who knew??

Tonight I emailed Cheney to let him know that my sweats are all washed and ready for me to wear them to the gym on Monday! I can't wait until he gets to go with me. I am really hoping he brings me home a Wheaton headband that I can wear to match:-)

Waiting...

Every afternoon around 2:00, there is one little dog in our house who watches out the window for Davin Boy. He waits and waits and waits until it is 2:30 and Davin's bus backs into the driveway. Usually Davin is greeted by Rocky who then has to sniff his wheelchair and figure out where Davin has been and what kind of smells he has on him today. Cute:-)

The Year was 1990

I have now been a parent for 25 years! It is hard for me to believe that. To make things worse, my BABY is turning 18 in just a couple of months!! Next time someone asks me my children's ages, I am going to include my dogs' ages because that will make me feel better. Having children who are 18 - 25 is not good! They are way too old:-) They are still fun, though and I do like to be around them. Still, I think using the dogs' ages is a good idea.

Of the 25 years of parenting, I have been changing diapers for 24 of them. It has been part of my life for over half of my life! Wow! HOWEVER....there was that one year....it was blissful....there were no diapers...

When Bethany was 2 1/2, this cute little 4 year-old named Ashleigh potty trained her. I am not even kidding a little bit. I would always say that Bethany was fine, but Ashleigh would drag (sometimes literally) her into the bathroom and insist that she "wanted" to go to the bathroom. Since Bethany has always adored her older sister, I guess she decided if Ashleigh thought she wanted to go to the bathroom, then she must have. So, Bethany was potty trained. I was not yet pregnant with Cheney Boy. Alan was home from his med-cruise just recently. Life was pretty good:-) I knew it, too. Sometimes when people have small children, they think life is so crazy and hectic and can't wait for them to grow up. Not me. I knew having two little girls was the best and having no diapers made my life just seem like a breeze.

It was a whole year until our little Cheney Alan Scott came into our lives in January of 1991. Even though changing diapers is no big deal and it is just a part of my life, sometimes, I still think back to 1990.....ahhhhhhh.....:-)

Happy 25th Birthday

25 years ago, my life changed forever. A little 8 pound, 5 ounce little girl came into my life and I was no longer strictly known as Heather. I was Ashleigh's Mom. It is a title that I have had for 25 years now and am so proud of. Happy Birthday to the baby girl who changed my life, stole my heart (and her Daddy's) and set my course on a different direction. I love you!!

25 Years Ago Today....

25 years ago today I was waiting and waiting and waiting. I had been given a due date of September 6th and here it was the 14th. 25 years ago, I was about as big as a house;-) Seriously. 25 years ago, I had a husband, but we didn't yet feel like a real family. We had been married such a short amount of time (6 months) and over half of that we had spent apart while Alan attended Navy boot camp and his first ET school. 25 years ago, I was writing letters almost every day telling Alan what was going on in the day. We got to talk on the phone some, but it was not like today where we have email and communication is so much easier. Phone calls were expensive and money was not something we had a lot of:-)

25 years ago, my whole life was about to change. I had been through the most terrible time of my young life. I had felt the stares of people in my church, heard the whispers, missed the eye contact, saw the disappointment in faces.

But now....now it was different. Now my baby was about to be born. The baby God had decided to bless me with in spite of who I was and what I had done. I was ready. I don't know how I was ready, but I was.

I made a decision to never make my baby pay for my mistakes. I took that to heart. I would welcome this baby and never look back.

When I think about that time in my life, the most amazing thing is the transition. When did my teenage heart become a mother's heart? I can not look back and see the day, but it is so obvious that it happened. I went from being a senior in high school concerned with soccer practice and homework and now 9 months later, I was ready for this new challenge. I didn't feel like I was missing out.

Thankfully, this day 25 years ago, I didn't realize I had another 9 days to wait!!!! She was worth it, though.

Be Specific

Davin came home from school today with a bit of an attitude problem. His note from school said he had a great day, but when he got home, his sister was on his sofa that he usually rests on. I was asking Davin questions, but instead of giving me a yes or a no, he decided to start hitting his sister. I firmly explained he would not be hitting his sister or he would have to go spend time in his room. I guess I needed to give the full list of things he was not to do since he then pulled Bethany's hair instead. Ugh! Really Davin? I told him he was going to have to adjust his attitude and give his sister a hug as an apology. It took a while, but he eventually submitted. Attitude, attitude, it's all about the attitude.

I Got It Right Today

The reason that Davin was in his bed crying (my previous post) was because he had a fever:-( I felt pretty badly that I let him cry and cry for so long. Needless to say, it was a long, rough night. Sleep did not come easily for him and his fever was not quick to break. After several hours, I took it to the Lord and prayed over Davin and his fever finally broke and he was able to rest.

On Thursday, Davin was feeling much better and we got up and got ready for school. His bag was packed, breakfast was eaten, straps were done on his chair. He was ready. The bus did not come. We watched out the window. Rocky watched out the window. The bus still didn't come. I called the bus garage. This year, Davin's school decided to observe the Jewish holiday. The bus would not be coming. Oh yikes. Just a couple of days into school and already I am confused! This is not a good sign;-)

Today, we got up and got ready. The bus came. Good day.

Giving In

Alan left today for Rochester for the week. Bethany is spending the night with her sister. I have one little 17-year-old boy who is whining in his bed. I am ready to call it quits and go and get him, put him in my bed and he will be asleep in no time. Little twirp:-)

Today was Davin's first day of school (the second for everyone else;-) and the day went well. For dinner, I took Davin and Bethany to Friendly's to celebrate the first day of school. Davin had a HUGE strawberry milkshake (thanks to his bus driver Leslie who gave him the Friendly's gift card) for dinner. We stopped by Costco and Joann Fabric on the way home. I even made up a special first day of school song and sang it to Davin on the way home. You would think he would be tired and want to go to sleep.

Sometimes you just need your Mom... I can relate to that.

Food Fight

I am in a food fight with Davin. Unfortunately, at the present, he is winning. It is a battle that rears its ugly head from time to time. The first battle with food was before he was 2 years old.

These days Davin is "supposed" to have oatmeal for breakfast. There are very few choices for breakfast since the school gave me a fit and a feeding center changed his whole diet for me:-) Thank you very much to them. Davin ate oatmeal every morning until he was probably 12 or so and then I started giving him cereal! He loved it and I would be careful that it was mushy before he started eating it, but then the diet change....and here we are back at oatmeal for the last 4 years, I guess.

Davin's normal routine is to eat the entire bowl of oatmeal. It gives him a good start and I have found the oatmeal to be an excellent place to stash some things I want to get in him for the day. I can throw in his calcium and vitamin D chewable thing, his flax, butter for more calories and sometimes even a multi-vitamin. Well, he is not too thrilled lately with oatmeal and I can not shove it into his mouth!

Normally, if my kids won't eat what I have for them, I just say fine. No biggie. But, when your kid is 17 and weighs a whopping 65 pounds and some of that has to be attributed to the hardware in his hip;-), you are a little more persistent about eating the calories.

So, we are in a fight. This morning it was a draw. He ate almost half. When school starts, it will be a different story. Do I wait this out or give him the yogurt that he will gladly eat? Yogurt has between 100 and 200 calories and I can not get the extras into that as easily. Definitely not the calcium because that needs to melt for him to be able to eat it.

Did I mention that we went to the neuro yesterday and she thinks Davin is way too thin?? Oi

I Had a Feeling

A mother in front of us in line at the place to get your blood drawn was waiting for her teenage daughter. She had been waiting for a while. She was getting nervous. She finally tried to go in and see what was happening. She came out and said there were 2 people with her. She asked what was going on and was told her daughter would be fine. What did that mean? Find with what?

Davin and I went in to have Davin's blood drawn. We had the same lady. She went over and whispered something to another tech over by the teenage girl who was still not done. I knew I should ask for another tech. This one just didn't seem quite competent. How did I really know that, though? I just hate to hurt people's feelings.

I back Davin's wheelchair up and tell her he has good veins in either arm and ask her if she has a preference for his arms. She asks me if I am going to stretch his arm out and hold it. I tell her that is what I usually do. I stretch his arm out and she grunts. I ask her if that is good or bad. She finally sticks him and has to move the needle around. It is uncomfortable for Davin. I can tell. I just keep telling Davin what a good boy he is and that it is almost over. She doesn't say a word to him. We are on the second of three vials and the tech asks me if his vein usually blows up like that. I tell her no. I have never seen that happen.

Maybe some mothers would not know if the vein usually blows up, but I am always holding Davin's arm, so my head is inches from his little arm. I ask her what it means for it to be blown up. She said that his vein just blew. What??? She is telling me in this voice that is not caring, not concerned, not anything. I ask her what that means. She said it is no big deal. She told me that I am holding his arm tight, so that is going to happen. I ask how it will heal and she said it is not a big deal and it will just heal. She is making me feel like I am being ridiculous. I am not panicked or freaking out, but I would like to know if I should be watching for something or have my doctor look at his arm or anything. To top everything off, as she is continuing to draw his blood, she asks me if I want her to stop. How should I know if she should stop? I told her that she would know better than I would if she needed to stop. I do not know what having a blown vein means!!

The tech goes over and tells the other tech what happened and had her tell me again (but in a much nicer and more thorough way) that it would heal by itself. Our tech tells me that his veins are very small and she used the smallest butterfly needle they have and that , of course, this (his vein blowing out) is going to happen. Hmmm, that is interesting because his veins are much bigger than they used to be and he has his blood taken every six months at least and has for his whole life.

I realize it is not a big deal and that it really was nothing to worry about. I just think I had a right to ask questions about something that happened to my child and I just wanted her to explain to me and maybe to Davin what had happened and maybe in a respectful way that didn't make it seem like I was ridiculous.

A Reminder

"Let your conversation be always full of grace, seasoned with salt, so that you may know how to answer everyone." Colossians 4:6

I really need to be reminded of this verse over and over and over again.

A Sleepover!!!!

In just a few minutes Bethany is coming to pick Davin up for a sleepover!!! She is house sitting for my sister and asked if Davin would like to have a sleepover. Are you kidding?? Of course, he would! Davin doesn't get to go on sleepovers very often, so the thought of it is very exciting for him and for me. I am excited that his sister would think of doing that for him and that he can be excited to go. We have talked about it all afternoon and now we just have to finish up dinner and get a bag packed. Sissy is even going to take him swimming tomorrow:-)

And Then There Was 1

I knew this day was coming. I certainly prayed my boy back to Wheaton. I rejoiced and cried tears of joy as we watched the Lord provide the seemingly impossible funding that enabled Cheney to go back for his second year. My logical mind knows that is where he is supposed to be and would never stand in the way. But....my Mom's heart is never ready for him to leave.

I was so thrilled to see his excitement at returning to college this year. I see how much growth there has been in him in the past year. I know he is supposed to be far away from home during this time and yet....I was not ready to let him go.

I hugged him at the airport and smiled....but was not ready to send him off.

He knows. He knows he is loved here, wanted here, cherished here, appreciated here, but he also knows he belongs at Wheaton.

I know tomorrow will be better, but today the tears seem to come so quickly. Sometime they catch me by surprise and sometimes I expect them.

This morning as we got ready to leave for the airport, I told Cheney I was pretending he was going to camp. I thought it might help:-) Tomorrow, I am carving a space of his room as my new scrapbook space (until he comes home, of course). I am hopeful that will ease my pain. Probably not, but I will be happy to have a place to work on my scrapbooks. Maybe I will get around to finishing the book for him that was supposed to be done by high school graduation;-)

I am hoping that the pirate flag that now hangs in his room that reads, "The beatings will continue until morale improves", will encourage my creativity;-)

Where Is My Heart?

I feel like I could be at a crossroads and yet part of my heart keeps tugging me back. After doing Awana and youth group for many years, I thought that maybe my time was up, at least for youth group. I had not made many connections with the girls this year as I am usually with Davin during youth group. I had expected that this would happen as I am more of Davin's aide while I am there. That is okay, but I wondered if I should still be there if I am not making progress with the girls. It seemed as if God was leading me away from there. Then, some connections are being made and I am left unsure of how God is leading.

Then, there is this very handsome man who will be living most of his days in Rochester. He doesn't like to live without me and I am thankful for that. If finances work out, we are reconsidering making the move to Rochester for a time. Part of me loves this and part of me doesn't. Both of my girls will be staying here, but I like to support my man and be there to make him dinner and take care of him during the week. He is so good about doing what he has to do to provide for our family and doesn't complain, but I know it would mean a lot to him if Davin and I (and at times Cheney:-) were there. It is not simple, though. We have a house here that, for many reasons that I won't explain, we need to keep. I have been apartment hunting again online and looking at some different areas to figure out if we can do it. So, limbo again. My favorite;-)

I have also been seeing a need and feeling a tug to minister to Moms with young children. I was involved with a MOPS program at my sister's church for a couple of years and I think this may be a ministry that God would have me take on in the near future. But, I must know first if I will be here or there. I know that God will show me what I am to do. I am very thankful and excited about the new connections I am making with the youth group and excited about the possibility of a ministry to young mothers that God seems to be laying on my heart. So many possibilities!

How Tricky It Can Be

I have grown very accustomed to having a child who is non-verbal. It does not often cause a problem really. I hardly think of him as being non-verbal. He is so much a part of everything and he is constantly communicating although not with words.

When Davin becomes sick or has something bothering him, things become a bit more difficult. I have been doing this for over 17 years, so I can read him pretty well and up until now have not had him into the doctor's office needlessly very often. So, when I notice something seems "different", I watch. I watch and watch and then at times, I begin to panic. Yup, I panic. I know it is hard to believe, but it does occasionally happen. I think God has given me that line where I cross over to being concerned and he uses that to keep Davin safe. I have to go with my gut since Davin doesn't have words.

Last night, I got concerned and it ended with a trip to the emergency room. In the end, the problem is not huge and Davin will be fine. The doctor and nurse were so compassionate. Poor Davin was nervous as could be. All that happened following his hip surgery in 2007 certainly has affected how he feels in a hospital setting.

Thursday Thirteen (My Sissy)

I decided to do a Thursday Thirteen today in honor of my sister. She just celebrated her 19th wedding anniversary and that is a pretty big deal:-) She is my only sibling and just happens to be the one I would choose if I got to pick. Here are 13 things about my sister, Jenny:

1. She was always called Jenny growing up, but now most of us call her Jen.

2. She is a nurse and has just accepted a job as a school nurse. I have mixed feelings about this;-)

3. She has three adorable children...Taylor, Trey and Jonah.

4. Jen is 18 months younger than me.

5. She grew taller than me.

6. Jen is the person I call to ask advice.

7. She is probably the most easy-going person I have ever known.

8. She deals very well with a sister who is a little more high-strung:-)

9. Jen's husband served in Iraq for a year. It was a very difficult year, but she handled it in an amazing way, just like she does every challenge.

10. She loves Jesus.

11. She makes me laugh all the time. We have lots of sister jokes that no one else finds that funny. That makes them even funnier to us!

12. I may have traumatized her during our childhood. For that, I am sorry. Really, I am:-)

13. She is perhaps the most reliable person I know. I can always count on her to listen to me, help me, or support me in any way that she can. She is the best and I am so blessed to call her my sister and my friend.

Missing Him

I am missing my Alan this week. Although we have spent lots and lots of days/weeks/months apart, sometimes I just miss him more. This is one of those times. He left early Monday morning and doesn't come home until late next Tuesday evening. All of our kids were here tonight for dinner and it made me sad he wasn't here. He loves when we are all together. Cheney's girlfriend Renee has been here this week visiting and he is missing that, too.

I am so thankful that he does what he needs to do to provide for us. Most of the time, I am okay with being here without him. Just not this week.

My Banner

I was listening to K-LOVE yesterday on the way to youth group (a half hour late!). It was the Proverbs 31 segment and it really touched me. She was talking about seeing someone who had won a beauty pageant and that this young woman was wearing her banner across her chest that stated her title. She went on to say that we wear banners, too. We may not wear them across our chest, but the world sees our banners. Do our banners read that we have joy, patience, long-suffering, hope, and peace?

I really like this analogy and feel challenged by it. Even if my banner does not read "Miss America":-), I am being watched. The things I say and my attitude affect the people around me and can either point them to what I have in Christ or turn them off from it.

Help me Lord to remember to wear your banners to the world I come in contact with.

Moving On...

Well, the day has finally come and gone. It was a strange date because for several months it was the day that Bethany was to be married and more recently, it became the date she was not getting married. We are now past that day and Alan commented last night that it is good to have that behind us. We are moving forward. Bethany is doing well and continues to rest in the fact that she made the right decision, in spite of the fact that it was a hard one. Instead of having a rehearsal dinner and wedding/reception, we went to see Despicable Me as a family and spent an afternoon and evening at Ocean City Boardwalk. We ate cheesesteaks together. Once during the weekend, Alan was concerned that we were spending too much money, but I reminded him that we were not spending nearly as much as we expected to;-)

A Special Prayer Request

Do you know how you pray for lots of different requests, but every once in a while, one just grabs you by the heart and won't let go? That is where I am today. A friend from church just delivered her baby girl. I believe little Addison is about 13 weeks early. About a month ago or so, the doctors had shared with the soon-to-be parents that they feared the baby had some kind of medical issues. This one has got my heart. I am praying and praying and often find myself on the verge of tears. Oh Lord, be merciful....

Bye Bye Bunk Beds

We have had at least one set of bunk beds in our home for at least 22 years. A short while ago, I decided that one change that we could easily make in our house and would hopefully help my back a little was to get rid of the last set of bunk beds. Davin had been sleeping on the bottom bunk of the set that he shared with Cheney for many years.

Last weekend, we cleaned and sorted and moved things around. Davin is now the proud owner of a slightly used full bed. (Previously, it was Mom Mom and Pop Pop's, Ashleigh's, Bethany's, and then Cheney's) He was pretty excited to be up higher and be able to see out of his window now. I am also thinking that he may be expecting Cheney to sleep there from now on with him, too since it was most recently Cheney's bed:-)

Today I am waiting for a futon to be delivered for Cheney's room. His room is teeny tiny and I was trying to come up with a good solution that would be comfortable for him, but also allow me to use his room a little bit for other things (scrapbooking:-) when he is at college. We are hoping the futon will fit in the room and Cheney will come home to a place to sleep when he gets back from Ohio tomorrow!

The Looks I Get

Tomorrow is the first day of summer school. This year and for the past couple of years, we have signed Davin up for summer school. His siblings all have jobs and with our house being pretty quiet in the summertime, it seems like a better option for him. I know that summer school is much more laid back. They do fun things and go on lots of walks.

When all of the kids were home for the summers, we decided that Davin would stay home from summer school. He just missed too much being away from the house. We would either have to wait for him to get home from his half day or he would miss whatever activity we were doing and we didn't like that.

Since Davin stayed home for all of summer break for most of his life, he knows what summer feels like. He knows it is not one or two weeks. A couple of years ago, when we first decided to send him to summer school, he looked at me with a pretty annoyed look when he was riding up the lift on the bus. It was a look that said to me, "I know what summer vacation is and I KNOW this was not it!!". I had to chuckle and yet he was not amused.

The other night, Davin was in the tub and I was talking to him about school stopping for the summer and then how he would go to summer school just a few days later. Davin started shaking his head no back and forth and back and forth. He hardly ever shakes his head and certainly doesn't do it consistently. I kept talking to him and telling him how much fun summer school is and how they do fun things and Davin just kept shaking his head no over and over and over again. In between, he would look at me like I was crazy for thinking summer school was a good idea.

So, tomorrow when the lift takes his sparkly black wheelchair up, I wonder what look I will get from Davin. It seems he has made his feelings pretty clear:-) Maybe if I have some kind of great snack waiting for him when he gets home....that seems to work pretty well for boys.

Perplexed

I have been married to Alan for 25 years. We have been in a relationship for 28 years and I have known him since I was 8 or 9 years old. So, you would think in that amount of time, he would know certain things about me. Along the way, he must have missed a couple of things.

Alan and Bethany graciously went to the store for me last night. I needed to make a pie and wanted to get started on that right after evening church, so they were willing to make the trip to the store so I wouldn't have to. I gave them a list and on that list was a birthday card. Today is a friend's birthday and I wanted to get her a card. No big deal. I just needed a card for a friend. No worries. I had total faith in the team that I had sent to do the job.

After they got home and unloaded the groceries, Alan instructed Bethany to show me the card they had gotten for me. They were both smiling. Okay, no problem. They got a funny card. I am funny. I like funny cards.

Bethany showed me the front and it was talking about animals or something. Okay, it was cute. She opens it up and inside the card, they are talking about poop. What???? They got me a card that had the word "poop" in it and then to top it off, there was a picture of poop with flies flying around it. I looked at Alan and asked him what in my life made him think that I would be able to give a card about "poop" to anyone. He smiled again and said he thought I would think it was funny. Really?? Are you sure you were thinking of me, the one you have known for most of your life?? Hmmm....

I guess we still have some things to find out about each other. No worries, though. My sister came to the rescue and I traded her my "poop" card for a nice friend card. My nephew will LOVE giving that to one of his friends:-)

Some Ugliness

Today I was ugly. I wasn't the only one, but nonetheless, I was ugly. I am responsible for my own actions. My son and I had a bit of a shouting match and it looked to be taking a very bad turn. Everything is fine now, but being a parent to college age and young adults is a very difficult task for me. The lines seem blurry, the goal unclear. It all seemed much easier when they were younger and I knew my role. It was so clearly defined. I could go into my parenting with assurance and gusto. Now, I am not always sure. Teach me, Lord.

As for Bethany, she is plugging away. God has been good and she worked through lots of things in the last couple of weeks. She is getting her wits about her and looking for what God has for her next. If you think to pray for Bethany, she could use prayer about the direction God would have her go.

Davin's golf tournament is a week from tomorrow. We are really short on everything and it is hard not to panic. God knows, though. I tell myself that over and over. He will not stop providing for Davin's needs. Praise God.

This Long Week

I saw this week coming, and yet could not really visualize how it would all play out. This week I watched someone I love very much have to make an excruciating decision. It was painful to watch and yet I am so proud of her.

Bethany's wedding date had been set for July 10th of this year. Just six weeks away... real doubts had set in a few weeks ago. Finally, on Monday night after talking things through with her Daddy, she was able to come to the decision she knew was right. She and Jeff were not right for each other. There were many, many tears. There was relief. There was assurance from God over and over again that this was the right decision. God is good all the time. In the midst of the hard, painful times, we see Him so clearly. I am so thankful that God loves my Bethany more than I can even imagine and that is A LOT.

My husband is not perfect. I do not share his imperfect times on my blog. I know that I only write about him when I am sharing good things. That is how I choose to write my blog. Although he is not perfect, I can say that I could not have asked for a better father for my children. I could not even have dreamed of all the things that he is to them. I have watched his relationships with them for their entire lives and it has always been one of my greatest joys. But, watching him lovingly care for his baby girl (okay, she's 22, but still..) and talk her through everything and then finally say the words that could free her from her commitment that she felt so strongly, the words that would let her crumble so that God could rebuild something beautiful, I was just in awe. With tears in my eyes, I watched one of the most painful and yet beautiful moments that I may ever witness. His love for her is immense and it showed. Her love for him is the same. It also showed.

I must say that this week has been one of the hardest. It has hurt to watch Bethany walk through such a difficult time. It has been a joy to watch her siblings and friends and family love her and cling to her and pray her through this time. God is good. He brings us to the place we need to be to be able to work in us his perfect will. God has His best in store for Bethany and I can't wait to see what it is.

Finding Yet Another Thing....

Today I found yet another water sport that I am a disaster at:-) Early this morning, our whole gang headed out of the hotel and rented a speed boat. We had it for two whole hours and it came complete with a wake board, jet skis and a tube. We held Davin tight while he screamed in delight as the wind blew in his face. We started taking turns on the tube. Bethany did it first and then Cheney took a turn and he was like a professional tube rider!! I was impressed. Next was Lexi's turn. She was a bit more "apprehensive" about the whole thing, but she did great. I was especially impressed with Cheney when I went to take my turn. I could hardly make myself jump out of the boat into the dark water. (Just thinking about that makes me feel a bit nauseous!) I finally managed to make myself jump in and then had to get on top of the tube. That was no easy feat for me and I hadn't even started riding yet! I finally managed to get up on the tube and rode for a little ways. It was fun! However, at the end of my ride, I fell into the water (again making me a bit nervous. Who knew what was in there? We had just visited Alligator Adventure earlier in the week!) Lastly, I had to get back INTO the boat. I thought I would never make it. I tried and tried and was so tired from my ride, I had no energy left to hoist myself back into the boat. Eventually, with my ever graceful moves and help from my strong Cheney Boy, I made it back into the boat safe and sound. Cheney and Bethany took more turns and did just great! Cheney even tried the wake board (which looks sooo very hard), but he was never able to get up on it this time.

For lunch, we ate at Hamburger Joe's. I enjoyed this so much, partly because it reminded me of Charlie's burgers from the Rochester area. I always loved that place and it was nice to have something similar. We had seen a commercial for this place and so Alan found it for me so we could all go. I decided I would like a t-shirt from the place since I had wanted to go there so badly, but unfortunately, the ones they had all had something written on it that I would not wear, so....no shirt.

Having gotten up so early, we still had tons of daylight left. We headed to the pool for a little bit more sun. Alan and Davin took a swim and then we all headed back up to rest for a bit. Tonight we spend some time packing up as this is our last night in Myrtle Beach. Tomorrow morning, we head to New Bern, NC where we will spend a couple more days before finally heading home.

We have had such a wonderful time together as a family (minus our Ashleigh and Kevin).

Monday

Today was a much slower day than yesterday. We realized we had been running Davin ragged in the past couple of weeks, so today we took it easy for the day. We all slept in and had a nice breakfast in the late morning. I like having the time to do that. After we got all cleaned up, we decided to head down to the pool for a little while. Bethany and Lexi were already down when Davin and I arrived. Davin had a great time swimming with the girls.

Bethany and Lexi and Aunt Sharon and Chelsea had made an appointment to go horseback riding at 2 pm. While they were gone, we just lounged around and enjoyed playing Phase 10 with Grandmom and Leah (another one of my nieces who is here, but I forgot to mention.) We had a nice time munching and playing the card game.

Bethany and Lexi got back to report to us how horseback riding went. The look on Lexi's face really said it all. Lexi is not a fan of horses or horseback riding. This was her first experience doing that and I think it may be her last. It sounded like an hour and a half of torture. I could not help but remember a similar horseback riding experience that I had in Aruba. This was two and a half hours of terror. Just pure terror. Much to Lexi's credit, she did not cry while on her horseback ride. During my ride, I was sobbing within two minutes of leaving. I definitely knew I would not be going with them today:-)

Tonight we will let Davin get a little bit of extra sleep, so we can do something fun tomorrow. What will it be?

For Ashleigh

This week we are on vacation in Myrtle Beach! We planned this vacation about ten months ago and have looked forward to it. Ashleigh was unable to come with us at the last minute, so we will update the blog with pictures to show her what we are doing. We miss you, Loubie!

Sunday was our first full day in Myrtle Beach. We went to the beach in the morning, which was no easy task. It has been about four years since we have taken Davin to the beach. It gets a bit harder as he gets bigger. When he was little, we carried him all the way down. As he grew, we took turns carrying him. Several years ago, I got a sled and pulled him on it when we got to the sand. This year, we drug his wheelchair backwards across the sand and then had a bath chair for him down by the water. It worked out pretty good, but I am not sure we will be hitting the beach every day;-)

Later in the day, we rounded everyone up (Alan's brother and his family are here, too. Also, Alan's parents are here.) except for Grandmom and Grandpop and went to the aquarium. We loved it and some of us even got to touch stingrays!

After the aquarium, we walked around Broadway on the Boardwalk (not sure if that is the real name) looking in shops, picking up a couple of souveniers and eating dinner at a Japanese steakhouse. Great day, but a very full day. I don't think all of our days will be quite so jam-packed.

Also, you may notice that we have an extra person with us. Her name is Alexis (Lexi) and she came with us on vacation!

Two Sisters

I have two daughters. They have been very different their whole lives. When Ashleigh was 2 and Bethany was about 6 months old, Ashleigh gave me my first big parenting challenge. She had always been a great sleeper and really needed lots of sleep. However, her will was like iron and she made up her mind that she would not go to sleep at night. I tried everything. I certainly was not a pushover kind of mom even way back at the beginning, but I just could not conquer this problem. We went for months where it would take me up to 4 hours to get one 2-year-old to sleep. I was beside myself. Ashleigh was miserable every day because she wasn't getting enough sleep. Finally, I got a system that worked and I was declared the winner (at least in the eyes of the willful 2 year-old. Phew!).

As soon as I had a handle on the bedtime problem, I decided that in a way it was good. Since I finally had figured out how to deal with this problem with Ashleigh, when Bethany went through the sleeping problem, I would know exactly what to do and it would be fine.

Silly, silly me...

Bethany did not go through the sleeping problem. She and Ashleigh have rarely had similar issues-problems-crisis. They are totally different. They adore each other and have always been best friends, but they are different.

Now we are planning Bethany's wedding. You would think I would be an expert at this because I planned a wedding just two years ago.

True to how different my two girls are, there are not many things about this wedding that will be like Ashleigh's wedding. Ashleigh got married in a church and had a sit down reception in a banquet hall. Bethany is getting married outside and the reception will be outside. Totally different things to think about for Bethany's big day.

I am not surprised. I just smile because I think that their weddings will just be a reflection of the people that they are and I think that is a pretty good thing.

My Alan Scott

I have so many things to blog about. So many exciting things are going on in our house right now. However, today is not the day for those. Today is the day that my Alan Scott was born. He is 44 years old today, so I will write 44 things about Alan.

Happy Birthday to my man!

1. Alan is 6'3"

2. He loves his family.

3. The day our first daughter was born, he literally fell in love with her.

4. Our oldest daughter Ashleigh is named after Alan. His initials are ASH.

5. Our oldest son is named after Alan. His middle names are Alan Scott. However, when Cheney was little, he asked me to just call him "Alan". So cute.

6. He is a protector. I have always loved this about him. I may try to handle something by myself, and he sometimes asks me, if he can take care of it yet. Sometimes I say yes and sometimes I say no. I love knowing he has my back always, though.

7. Alan wants to be like Christ. I can see this in his life and have watched him grow and grow.

8. Alan doesn't mind when the house is messy. Thankfully!

9. Alan is not a picky eater and will eat just about anything.

10. Alan has traveled all over the world. Mostly without me.

11. Alan met a little girl with long stringy brown hair and teeth that were almost buck when he was about 9 years old. Someday he would marry that girl:-) (After braces, of course!)

12. I know that Alan would give his life for me or one of our children in a heartbeat.

13. Alan started a business 6 years ago because he wanted his brother and Dad to have a place to work.

14. Alan can do most anything on a computer.

15. He is very intelligent. When we were in school, he never took a book home and always did very well.

16. Alan gets a little frustrated with me that I am directionally impaired.

17. When Alan and I were on our first official date, we were in a serious car accident and he pulled me out of the car. (into sticker briars)

18. Alan likes to play video games, especially with Cheney Boy.

19. Alan loves to travel.

20. Alan takes excellent care of Davin.

21. He is not really an animal person and gets a little annoyed at how I talk to our dogs.

22. He doesn't seem to need many friends.

23. The minute before Ashleigh walked down the aisle at her wedding, Alan told her she did not have to go through with it.

24. Alan really likes snorkeling.

25. Alan had a very serious accident on a quad and God spared his life.

26. He is a hard worker.

27. He doesn't enjoy working around the house.

28. Alan loves spicy food. The hotter, the better.

29. Alan has blue eyes.

30. He has always enjoyed having the kids' friends at our house.

31. He likes to do things with our kids.

32. Alan has been a coach for our kids' teams many times.

33. Alan was in the US Navy for 6 years, but did not choose to stay in because he had to be away so much.

34. Alan has one brother and one sister.

35. He once dropped his neice and she talks about it frequently, even though I know she doens't remember.

36. Alan has always loved Wednesday night prayer meetings the best, even though we don't get to go now because Awana is during the same time.

37. Awana is in Alan's blood.

38. Alan is spending his 44th birthday with our son, Cheney, and will get to watch Cheney row in his regatta tomorrow.

39. Our kids know they can count on Alan.

40. All of our kids look like Alan. He has always liked this very much. He once told me that people probably wonder if I am the natural mother.

41. Alan and his brother sound just alike and so does Cheney now.

42. Alan would rather eat at home than to go out.

43. Alan had to get new shoes last week to make his traveling more "streamline". He is very serious about his routine at the airport. When he is traveling, I call him "traveling Alan".

44. Alan asked me to be his girlfriend on November 28th, 1982 at 10:06 pm. I think it was a good decision to say yes.

March 2, 1985

It certainly is not a story that fairy tales are made of. It did not start out with a fancy proposal or an excited bride. I remember my father asking me on the day that I was getting married if I was excited. I answered him that it was something that had to be done. I am hoping most brides do not walk into a marriage with that kind of attitude.

As sad as the beginning of my story is, I don't think of it in that way. To me, it is a story of God's amazing redemption. A story of His faithfulness to us when we choose to be faithful to Him. A story of God taking something broken and when placed in His hands, made beautiful. That is the story of my marriage.

Today marks 25 years since the day that I became Alan's wife. It was a decision made because we were having a baby and thought that we would like that baby to have both parents together to raise her. We walked into that decision with very little thought (although we had been dating for two and half years) and maybe no prayer. We discussed with our parents when we would get married and I can remember sitting there and saying we had something to do the following weekend, so we made it for two weeks away. (Even as I write this, I can not believe this!!!)

I do not encourage anyone to go into MARRIAGE with such little thought. However, although we went into a marriage as two 18 year-olds who were totally not ready to be married, we did have one thing going for us. We were dedicated. Once we took those vows, we were dedicated that we would stick with them until the end. I have to tell you when you are 18 at the beginning of the marriage, the end can seem very, very far away;) We had a long, long road to walk together. Alan and I decided to sink our teeth in, figure things out and be dedicated to making our marriage work.

I have to be fair and say that even though I was not excited about getting married or ready to get married, Alan knew he was supposed to be married to me. He did not have the same reservations that I did. He knew everything would work out. We had discussed the possibility of marriage in the near future many, many times. He had told me that he would either marry me, or he would never marry.

When I look back and think of all the mountains and valleys that Alan and I have journeyed together, I just stand in awe. I said at the beginning of this post, that this story was not what fairy tales are made of and yet I am so very proud of our story. I am so blessed with a husband who has loved me for most of my life. I married a boy and he turned into a man that I am so pleased to call my husband (or more commonly, "my man";)

God knew when that scared, scarred and unsure 18-year-old girl squeezed in through the back door with her Dad (we were not allowed to walk down the aisle) that she was making the right choice. He knew that there would be dark days, but He knew He would equip her to deal with the challenges He set before her.

You have to excuse me today. There is certainly an amount of pride that I feel today. When you become one of "the teenage parents" in a "teenage marriage", you know that odds are against you. Quite frankly, I am positive there were people who whispered how long they thought our marriage would last. I am so thankful to my God and my husband for being with me through these last 25 years. I am so blessed to be able to say that I have not just endured 25 years of marriage, but it has been the best! What an amazing God we have who takes the tattered and torn and makes them into something beautiful.

Happy Anniversary to the love of my life!

Homecomings

For most of my married life, Alan has traveled to some extent. He left to go to Navy boot camp a couple of months after we were married. I finished out my pregnancy and delivered Ashleigh without him:( Because God has seen fit to have these periods of absences in my life, I have come to appreciate some things about being without Alan for periods of time. The very best part of it....the homecomings! I love the homecomings!

Now, I have had many different kinds of homecomings. While our four children were little, Alan worked away four days a week for two years. So, every week, it was so exciting to watch my little children stand at the window and look for Daddy's car to get home. The weekends were so exciting because Daddy was home with us!

The granddaddy of all homecomings for our lives was when Alan was in the Navy and went on his second Med-cruise. He would be gone for six months. Ashleigh was 3 1/2 and Bethany was just about to turn 2. When I would look at the calendar and turn the pages of six months, I saw no possible way I could make it through that. As the day approached for them to ship out, I was pretty sure God was not going to let this happen. Surely He knew I couldn't handle it and would not send Alan away for such a long time and leave me alone with two little girls. Well, God did have Alan set out with his ship for six months. Were those six months hard? (Certainly not as hard as the wives who send their husbands to Iraq or Afghanistan for a year or more!) They were hard. It is hard when your four year-old little girl walks around the house with a picture of her as a newborn baby and her Daddy holding her. While Ashleigh was doing this, she was crying with this cry that comes from your gut saying, "I want my Daddy! I want my Daddy!" I thought my heart would break in two pieces.

But, at the end of all of that.....the HOMECOMING!! The day we had been living for and talking about for six months. The trash days had been counted down and the USS Virginia was on her way home!! New outfits were bought, hair styles were considered and then the day came. I got up hours and hours early just to be able to enjoy every minute of that day! The girls and I had a bag packed with snacks and had fixed ourselves up all pretty:) Our Daddy was coming home. As the ship came in, the men dressed in their dress blues all looked the same standing on the deck. Then, slowly they got closer and we could recognize our Daddy!! There is nothing that I have ever been through that compares to that. I could touch him. He was right next to me finally!! The girls were so happy to be in their Daddy's arms:)

Since that day, we have spent many many more days apart. As soon as Alan got out of the Navy, his job took him away for 3 1/2 months!! I had thought it was only the military that did that.

In Alan's job in Rochester, he traveled lots and would be gone for a week at a time or sometimes a bit more.

Now we are back to Alan traveling. I miss him lots while he is gone, but I can not help but like some parts of it and look forward to his homecomings. Tonight Alan will come home after being gone for four days. I will watch out the window while I continue making preparations for dinner and when I see those headlights, I will be so excited to see him!

Alan may read this and read other things into this post. He is going to tell me that I don't miss him and am glad he is gone during the week. That is not it at all. God has given us this in our lives. I choose to find the positive parts of it and enjoy them.

Boys vs. Girls

I frequently hear people talk about boys being so much easier to raise than girls. My answer is generally that it depends on the child and as genders go, they each have their challenges. They may not be the same challenges or come at the same time, but they come. Growing up is hard.

I am wondering if people who insist that boys are soooo much easier than girls have ever watched a boy try to become a man. I have found (in my own son and in other boys' lives) that this is a huge, difficult time of life. Right now I am praying for a young man who is very special to our family. He is at a similar point in his life that my son Cheney was in at this time last year. He has made some bad choices and there have been consequences that we presently don't know the extent of.

In my experience, girls are freer to show their emotions. They can cry and let those emotions out. It can look ugly, but they come out. After a certain age, boys are not really permitted to cry. This certainly was not something I had told my son, but I think boys catch on pretty quickly that by a certain age, crying does not look good for them socially, so they bottle it up. Eventually those emotions come out and I have seen it come out as anger or rage in boys. I know it did in my son and it was terrifying and painful to watch. Dealing with disappointments in themselves can leave them so angry. They need to be a "man" and yet they have so many insecurities and so many questions about what that should look like in their lives. And, of course, when they know they have things in their lives that are not living up to their own expectations of themselves.

So, as I think back to a year ago when my body was literally between my son and the front door as he desperately tried to get out of our house while I wondered if I would end up being hurt or if the police would need to be called, I will pray for this boy that we love so much. I will pray that he will walk out of his anger and into all that God has for him.

Trouble

"Let not your heart be troubled...."

My heart is troubled. We have a situation that we have been praying about for quite some time. It is becoming a desperate situation and we are at a lack of answers. On our knees...

A New Doctor

Yesterday I took Davin to see a new doctor. The neurologist has insisted for two years that Davin must see this doctor. I was not sure why, but the neurologist was insistent every single time we saw her, so finally I got a hold of them and made an appointment. We took our x-rays and records with us. The doctor sat down and asked about Davin's history and then asked me how he could help me. You see, the problem was that I had no idea. I explained to him that I was hoping he could tell me how he might be able to help us. I wasn't sure what his expertise was. When I called to make the appointment, the receptionist asked why we were coming to see the doctor. I replied that I did not know. She asked if he was having trouble walking and I replied no. He is non-ambulatory. She asked if he wore MAFOs and I said yes. She asked if he was having problems with them. I said no. Hmmm... The neurologist insisted we see you, so that is why I am making the appointment.

So, the doctor explained that the neurologist was concerned that Davin was very tight. Well, she is always concerned that he is tight. Last appointment she was concerned he was tight and too thin. Really????? I had never noticed! You think he is tight??? And I thought he was chubby, not thin!! Okay, I am being smart. Every time we go to see the neurologist, she tries picking up his foot while he is in his wheelchair and stretching it out straight. You are never going to do that and have Davin NOT feel tight. She does not usually listen to me when I tell her how far his range of motion is, etc. I have come to accept this and just try to tell her and move on.

The new doctor seemed nice and gave me some things to think about. I am going to consider doing botox shots in Davin's arms right before his next round with intensive PT. That is the kind of thing this doctor does.

Although I thought the doctor seemed very knowledgable, I couldn't help but leave with somewhat of a bad taste in my mouth. When the doctor came in, he shook Davin's hand. That was good. However, that was the last time he spoke to Davin. Not to mention that he used phrases like "I have done this proceedure on someone of normal intelligence" and "kids who are older don't respond as well to PT". He made quite a few comments that I had to come home and talk to Davin about. If the doctor would have talked about these kinds of things, but had addressed Davin, I probably wouldn't have been as upset. I talk frankly in front of Davin. He didn't, though. I had to come home and tell Davin that even though the doctor has said that "Davin can't do anything for himself", that that wasn't a big deal and that is not what makes someone a great person. I had to talk to him about the fact that just because he may not know everything, he is still someone I am very proud of because he is trying to be the very best he can be.

My Dad was with us for the visit. My Dad thought the doctor was so good and I simply had to say that yes, he seemed to know what he was talking about, he only addressed Davin (his patient) one time and that didn't seem very good to me.

Maybe I should have said something. Maybe I should have asked him not to say those things in front of Davin or maybe the doctor just thought that our situation was so hopeless that Davin knew his life was horrible. Maybe that is just how doctors have to look at things because they just see the problems and not the people. I hope I never stop seeing people. I don't want to see their problems. I want to see their potential and their purpose. It is so easy for me to feel discouraged when a doctor asks me so many questions to find out if Davin can in any way help take care of himself and I have to answer no to every single one. In real life, though, when I am living with this boy and learning from him, I don't think about the fact that he can't brush his teeth by himself (okay, he could try, but they would not be clean;) or put his shirt on. I think about all the ways he is an amazing part of my family!

Faithful

I was listening to K-LOVE in the car today and they were talking about a website or something where people were being challenged to come up with one word that they wanted to desribe their lives for the next year. It could just be one word. I didn't have to think long about it. They mentioned many words that were so meaningful and good, but faithful came to my mind immediately. I want to be faithful....in so many ways. I want to be faithful to my God. When He asks me to do something that I don't think I am equipped to do, I want to be faithful to trust Him. I want to be faithful to be a good wife and go the extra mile even if Alan isn't giving me back as much as I would like him to. I want to be faithful to my kids. I want to be a solid, consistent example to them. I want to listen to them and pray for them faithfully. I want to be faithful in my ministries, even when I get tired. I want to be faithful to take care of my boy in the best way possible. I want to be a faithful daughter. I want to spend time with my parents and parents-in-law. It goes on and on. To me that word sums up so many areas in my life that I am constantly in need of working on. Faithful doesn't give the idea of doing something half-heartedly like I sometimes want to do things. Faithful puts in the time and energy needed to do the job right. Whatever it is.

So, what is your word???

My Asheigh Diane

My girls read my blog more than anyone else. Of course, their favorite is when I do a post about them. Looking back through my old posts, I never did a post just about Ashleigh, so even though it is not Thursday, I will post 13 things about Ashleigh Diane:)

1. I had Ashleigh when I was 18 years old and she is the baby that I first fell in love with. I absolutely loved being her mother.

2. Ashleigh had a very strong will and often had what we loved to call "episodes".

3. Ashleigh has adored her little sister from the minute she first laid eyes on her. The first day Bethany was home from the hospital, Ashleigh tried to share her french fries with her.

4. Ashleigh is a director for T&T club in Awana and loves leading the girls. She has a heart for troubled kids, especially.

5. Ashleigh has gone to Botswana, Africa and it was life-changing.

6. For Ashleigh, family is very important. She hates to miss a family function.

7. Ashleigh has been married for two years!

8. I could always count on Ashleigh to watch her younger brothers and sister if I needed her to. She loved to have them home with her while Alan and I went out.

9. Ashleigh is one of the most loyal people I have ever known.

10. Ashleigh loves working out.

11. She also loves dying her hair. One of the first things she did when she went away to college was to dye her hair.

12. Ashleigh has worked as a nanny for the last few years, although she does not presently have a job:(

13. Ashleigh is fun to be around! She brings a party wherever she goes. If Ashleigh is missing, things are not as lively as they are with her there.

14. I am proud of the young woman that she is. She is faithful to God, loves her husband and her family and has worked so hard on evening her strong will and letting God use it for Him.

Another Wedding

In our house there is quite a bit of talk about weddings now. Especially when it is just Bethany, Davin and I. Alan is not quite as excited about the whole thing;) It is interesting to listen to Bethany describe what she would like to have for the ceremony and reception. It will be very different from Ashleigh's wedding just two years ago. Ashleigh's wedding was very traditional and formal. Bethany is going to have an outdoor wedding and reception and it will be much more casual. It will be great fun.

Bethany and Jeff are out tonight to meet with the couple that is going to do their pre-marital counseling. Tonight they are getting together to get to know each other before starting on their session. I pray it will be a blessed time and a time of thinking through and talking through lots of things.

Davin had a huge week last week. In the matter of two days, he had a sleep EEG (he had to stay up from 1am for this test), blood work, x-rays, went to the ortho doctor who had done his surgery, and got casted for new MAFOs. That was all just on Monday and Tuesday. I have to say, my Davin is just one of the easiest going people I have ever met in my life. On Monday morning, he got up at 1am and watched Little House on the Prairie through the night and was at the hospital in the morning for 5 hours and was such a trooper and was still smiling. I really learn from him all the time. It is amazing to me the attitude that he constantly has.

This week in Bethany's class, she got very upset. It has happened before. She is a social work major and so many times in classes, they end up discussing people who have disabilities. Unfortunately and sadly, the disabled people are not spoken of with respect or value. That was the discussion this week. They were talking about how even though people with disabilities don't have the same value..... These kinds of words cut like a knife when you have a name and face for the "people". I try to tell Bethany that it is just different when people don't know anyone personally. Somehow they are able to feel more valuable than someone they don't know. For Bethany and one other boy in her class who had an uncle with Down's Syndrom, "these people" are so much more. Sometimes Bethany says things and sometimes she just can't. One time, she had a college professor who was so ignorant on the subject, I wanted to go in and speak to her class to maybe shed some real light on the personal part of what they had been talking about. The teacher just did not get it and I wasn't ever able to do that. It was ashame. Bethany goes to a Biblical University, but that is no guarantee that people understand the value of everyone. It is still easier for us to think that being smart and capable are qualities that make us valuable. That is too bad. I wish those students coule meet my Davin.

My Thoughts on Mary

I have been thinking about Mary as I often do at this time of year. You know the Mary that I am writing about. The mother of Jesus. She started out as just an ordinary teenager and was given the huge task of raising God's son!

I think about her at this time of year because we had a couple of things in common. We were both told that we were going to be teenage mothers. We both felt the shame and embarassment of our situations. We both had to deal with the looks and glares of others. We both did not know how we were going to get through to the other end of the situation we found ourselves in, but we knew the one who was going to get us there.

Of course, we had some differences. My teenage pregnancy was due to my own disobedience and sin. Mary's was because God had found favor in her. She was chosen to carry the precious gift that would be the Savior of the world.

Even though we can think about so many wonderful things about Mary's job of carrying the Son of God, I believe Mary still dealt with the human things that I dealt with, too. When she dealt with them, though, they were unjustified. She had done no wrong. I had and maybe deserved every look, unkind word and whisper. Mary had not only done nothing wrong, but she had done something right to be so honored. But, did people really know that? Did they really believe it? When Mary saw other girls that she had grown up with on the streets, did they not whisper about her? Did they not ignore her or talk badly about her? When Mary's grandmother came over after finding out that Mary was with child, did her grandmother have the look of shame in her eyes as she looked at her granddaughter? What did Joseph's family think of the Mary that was engaged to their precious son? Did they believe that an angel had let her know that she would carry God's son even though she was still a virgin?

I am thankful for where my life has taken me for so many reasons. One reason is that maybe I can know just a little bit of what Mary went through in those first few months as she wrestled with her own fears and concerns while trying to keep her eyes on the goal.

My Job Got Personal

I work very part-time for my brother-in-law. I help with the filing at his law firm. I go in whenever my schedule permits and I enjoy the people I work with. They always make me feel like I am doing them a huge favor by coming in and filing!

Today I was at work filing just like I usually do. I happened upon a document called a "Final Decree". I read part of it as I was trying to figure out how to file it. As I read, I realized this document had more meaning for me than I had known.

Alan and I were told that before Davin turns 18, we must become Davin's legal guardians. I had no idea this was something we had to do. Wouldn't we just continue caring for Davin like always because he is our son? Apparently, when someone is 18, they are an adult. If they are not able to make decisions about their care, etc, they need a guardian. We have been discussing this with my brother-in-law and as an attorney, he is going to help us do this in the next couple of weeks. I guess I had not thought too much about the legal aspect of this. I just thought it would be a judge seeing that we love our son and want to take care of him for the rest of our lives.

Well, as I read the document, the words that they used to describe this person.....it brought tears to my eyes. The document talks about how this person can not make decisions for themselves and it all sounded so hopeless. So, I am guessing that Davin's document will not say, "Davin is an 17 year-old young man who is loved and adored and needs his family's input to make decisions." I wish it was going to say that, but the words I read today, cut through me like a knife. The court was going to talk about my son that same way.

To tell the truth, this has been happening for Davin's whole life. I have received tons of papers that described what Davin can't do. Reading any of those papers would discourage me so much, especially in the beginning. However, as I got used to "the drill", I started getting the papers in the mail and tucking them away where I had them if I needed them, but I didn't have to give them the power to define who my boy was or was not. Davin is not just words on a paper. He is my son, a brother to three siblings who adore him, a grandson who lights up when he sees his grandparents, especially his grandfathers:) Davin gives so much and does not have speech. How much smarter is he than me to be able to communicate with so little??

I think the day we go through the court proceedings will be rough. We have been through rough days before. We have heard devastating news before. To quote my husband from the day that our son was diagnosed with cerebral palsy, "Heather, is he any different than he was yesterday?" I will remember those words on that day, too.

He Said Yes and then She Said Yes

After a very rough few months, it was time for some good news! Two weeks ago, we had a nice young man come to our house and ask to sit down and talk with Alan and I. He came to ask if Alan would give permission for him to ask Bethany to be his wife. (Wow, just to write those words is a little odd still!) After much discussion......many questions.....some requirements...Alan said yes. Alan told Jeff that he was free to ask Bethany.

So, Alan asked Jeff when he was thinking about asking Bethany. Jeff had the ring with him. At first, Jeff was thinking of doing it in the future, maybe sooner, okay, how about right then?? In the end, he went and took Bethany to a local park and pretended that the talk did not go well. Finally, he could not wait any longer and got down on his knee and asked Bethany Alyssa to marry him. SHE SAID YES!!!!

I Did the Easy Thing

Beginning a few weeks ago, Alan began working in Rochester, NY during the weeks. He comes home on the weekends for now. Eventually we will move up with him, but are waiting to see how some things shake down before deciding when that will be. I have been adjusting to not having him here to help me. Lots of times the evenings feel like another work day. I know all of the things I have to do for Davin and I just go through and check things off one by one. Somehow it just makes such a big difference knowing that Alan is not here to give Davin a bath or help me with carrying him. I have done the parenting thing by myself many times before, but I had all of my kids here and even though that caused more chaos, too, they were very helpful to me and their brother, too.

Since Alan has been gone, cooking has not been my strong suit. I have had grilled cheese more times than I can remember and I have also had bread and butter for dinner a couple of times. It just seems that by the time I make Davin's dinner (he doesn't generally eat the same things that I do) and get him fed, bathed, stretched, homework done, etc., I just don't feel like cooking. Not to mention, it is so weird to cook for one or two people.

Bethany is still here, but is generally not home at dinner time. She works evenings at Target and doesn't get home until after midnight now. She has come in and whispered to me asking what we had for dinner and I have had to tell her that I had bread and butter or grilled cheese!

A couple of nights ago, before Awana, I had made a big ceasar salad. No chicken in it. Just salad with bacon (which Bethany doesn't like). It seemed a good idea at the time. We were sitting at the table when Bethany asked me when the last time was that I made dinner. She said it was so discouraging when she would work all night and come home to find that there were no leftovers of any kind. Remember that I have not been cooking at all, so there are not any leftovers at all! I told Bethany to please realize how different things are for me without Dad here. This is the part where I realized I had really dropped the ball.....she reminded me that this had been finals week (which of course, I knew). She had not had a decent meal for all of her finals week. This may not seem horrible at first, until....I thought about what I had done just a couple of weeks before.

Cheney's college had sent home papers telling parents that we could order fruit baskets for our college students. The baskets would be delivered to them the Saturday before finals week and would be an encouragement to them as they begin their finals. This is not something odd for colleges. Bethany's college did the same thing, but I had never been able to afford to do this before this year, so Cheney will be the benefactor of the fruit basket. I was so excited as I was writing the check and sending it off to Wheaton. I imagined how excited Cheney would be and how he would have those snacks in his room while he was studying. I felt badly for the years that I wasn't able to do it for my girls.

However, I did not take advantage of the fact that this year I had the college student living with me and could encourage her myself!!! I had her living right here at home and could have made her meals and made sure she had snacks. What was I thinking? Instead, I was only worried about if Bethany will pass her class that she is nervous about and what it will mean if she doesn't. I dropped the ball. Not my finest moment as a mom. I did the easy thing. I wrote a check and sent it. I didn't take the time to invest in my college student who was right under my nose. In fact, I discouraged her. How disappointing to come home after working a long night and have to make peanut butter and jelly every night.

So, I guess I need to spend more time looking for the harder thing to do. Instead of thinking about how difficult my situation is and focusing on that, I need to look to meeting the needs of others. I do hope the lesson has been learned for me. Thankfully she has one more class to take in January.....

Finally

I finally got some motivation and had a very productive day today. My dear friend Tina, encouraged me that maybe this is a time of rest for me. I can embrace that thought, but it is unfortunate that it happens to coincide with the time that Alan has been without a job. Therefore, every day that I am here just hanging out and reading or watching Little House on the Prairie, Alan is watching me and I am pretty sure he has decided that this is what I have always done. He just wasn't usually home to watch me:) So, today, I finally got up and got lots of stuff done. Dinner was in the crock pot by 10 am, I whipped up a batch of sugar cookies and they are even iced and sprinkled already. We did some cleaning, laundry and all of that good stuff. Davin also got fed two times already. There have been some Saturdays when I suddenly realized that I had forgotten to feed Davin lunch! But, not today:)

Therapy is over now for Davin, so Monday will be the start of a "regular" week. Davin will go back to school and I will go back to work. Also, Alan's job search has been fruitful lately. He has a good potential job and is traveling next Monday to see the new office. It sounds like they would like him to come work for him, if he thinks he can stand doing the job. Alan seems up for the challenge. At this point, it sounds like the job would potentially move our family, but maybe for just one or two years and then we would come back to NJ. For now, our game plan (provided they really do offer the job to Alan) is for Alan to move up to Rochester, NY for approximately 8 weeks and see what he thinks of the office, etc. At that point, we would decide if we would move up there or Alan would just work there for a time and we would stay here. A short-term move (as we have done when the kids were little) is not so easy now. There are many services, etc, to set up for Davin and we will just have to be prayerful about what is best for Davin and for our family. Bethany has decided that even if we move, she will stay here and probably stay with family or stay in our house here. So much to pray about. God just keeps telling me to stay on my knees!

An Encouragement

Davin is in therapy presently. Therapy means driving for an hour each way and then sitting and helping while Davin does three and a half hours of therapy each day. He goes Monday through Friday. This time it is for two weeks. This is our second week. Davin is doing awesome. I think if someone asked me to work out for that long (and it is without a break unless his hands are getting purple or something and we need to give him a couple of minutes;), I would just collapse or certainly whine quite a bit. Davin does it like a trooper. I am always amazed at him. He loves his therapists and we have certainly gotten to know each other over the years that we have spent going to this therapy. God has been so gracious to provide the funds for him to receive this therapy and I am happy to take him.

One of the highlights of our weeks at the Rehab Center is seeing another girl who has CP and her mom. During my almost 17 years now (Yikes!) of having a disabled child, I have not had many friends who also have disabled children. I am not sure why, but I have not. My friends have certainly been a huge support for me and have loved Davin very much. However, getting to spend some time with another mom who deals with the same issues is just a blessing of a different kind. Anyone who has a child can relate to parenting issues, but I have always thought that the world that you walk into when you have a disabled child is just that, a bit of a different world. There are different rules, different timelines and certainly many, many, many more people interested in giving your opinion about how to best take care of your child. That in itself brings a whole different aspect to parenting. If I disagree with the professional (as I presently am on one issue), are they going to report me to Child Protective Services?

It made a good day at therapy just a little bit brighter getting to see this "therapy friend". I love the way the Lord provides what we need just when we need it.

Where Have I Been?

For those of you who have not totally given up on me, thank you. I have not been around. I have not blogged in months, nor have I even checked in for quite a while. This summer has been rough. There have been challenges that have been big. I have been driven to my knees multiple times. I have found that is where God wants me. He wants me reaching for His Word like my life depends on it. He wants constant communication with Him. It is a good place to be. There are still many challenges and they can not be shared in detail on here. I will have to think of another way to share on my blog. Maybe share more about having a child with a disability or maybe share more about the stage of life where your children are leaving the nest. We will see.

I will tell you about one HUGE change in our house. Cheney Alan is at college now. He left in the middle of August and that has been a huge adjustment for everyone. Our house is so quiet, it is hard to take. We find ourselves wondering what in the world to do with our time. Frankly, I sit around a lot. I can not seem to get out of this speed. I used to have so much to do, I rarely had time to take a break. Now it is hard to get motivated because I have such a slow schedule. I am working more and that is good. I know I will get used to the slow schedule and will take on more projects, but probably not today:)

Class of 2009

On Friday night, Cheney Alan Scott walked across the platform and received his high school diploma. It was a big day and a wonderful day. Cheney, we are so proud of you!

Two Kids, 8 Wisdom Teeth and Lots of Ice

This past week has been all about wisdom teeth. Last Wednesday, Cheney had his four wisdom teeth taken out. Bethany followed him five days later and had hers removed yesterday. My couch has been full of one Hester or another with a bag of ice held to one side or the other of their face for almost a week now. I am so thankful that I have a flexible boss and can be home with the kids while they are recovering. Even though they are pretty grown up, I know they appreciate having me nearby to get them new ice or find them something to try to eat.

Happenings at the Hester House

Time is marching on awfully fast lately. In the last month, Cheney has been to South Africa and back, been to Orlando for his senior class trip, gone to his senior formal and Davin has completed three weeks of intensive physical therapy. All of the events were exciting in lots of different ways. Cheney's trip to South Africa seemed incredible. What an experience! He was able to share with some people, bond with a boy at an orphanage, and visit a gaming reservation. Davin's three weeks of PT was amazing! I keep waiting for him to stop progressing since he is older now. This time amazed me and amazed his therapists. It is hard to describe it to you because he did not start walking or talking or anything like that, but my boy was putting different things that he has learned to do over the years together. He was deciding to do things without being asked to do them I(and let's face it, sometimes begging...). Davin was keeping himself in a hands and knees position and then keeping his balance to stand up on his knees. Wow! Davin really didn't have balance just a few years ago. He is pretty awesome. I think Davin has a different work ethic now that he is older and that has helped him, too. We are no longer begging him with games, etc, but he is just doing what he needs to do. Cheney's formal was very exciting, too. Davin made the final decision concerning Cheney's tux and it was fun to help him get ready to go.

Okay, the big news coming up is that Cheney has decided where he is going to college!!!!!!!! I can not tell you what a struggle this has been. Should he go far, should he stay, and on and on. We were waiting on the financial info for one more school (his top choice) and when that finally came back after quite a bit of time, it seemed clear what God had for Cheney for the fall. The sad part is that in August, we will be driving our son to Illinois and dropping him off. He will be attending Wheaton College. The good news is that Bethany has moved back home and will be living here from now on since she will be doing her four day placement next semester and it is local. So, I am trading one for one!

The other big news in our house is that my Bethany is bringing home a boy for us to meet on Thursday night. Okay, I guess you have to call someone who is 25 a man:) Anyway, Bethany has not been one to date. She has always known what she is looking for and was pretty quick to rule a guy out. It seems that this guy is a bit different and it has been fun to hear her talk about him. Since she has never been boy-crazy as a teenager and has waited so patiently, we have never heard her talk about someone like this. Fun stuff. Of course, Alan is waiting to see what he thinks when he meets him. He also let Bethany know that if he doesn't approve, the deal is off. You have to love having a Dad who cares:)

As we go through all of these exciting things, I am reminded of two families who have had their lives turned upside down. I continue to pray for Brett and Paige and all they have before them.

Mom, can you?.......

My kids have often times called me and asked, "Mom, can you.....?". Lots of times it involved making some kind of food for something at school. Today Cheney called me after school and asked if I could make tacos for his Spanish IV class for tomorrow. My mind started running. Would chips and salsa be what he had in mind? I considered sending that with him and he wouldn't have complained, but instead thought through what I had in my house and came up with most of the fixings for chicken quesadillas. (Sorry, I am pretty sure I am spelling that wrong.) I had Cheney call a couple friends to see if they could fill in the empty spots for me. We got our part done and it's all packed up and ready to go for tomorrow.

Every time I do something for Cheney this year with school, I think about how his school years are almost over. I am so thankful for every time that my kids called and asked, "Mom, can you....?" I'm glad they knew I would do it. I'm glad they knew they could feel free to ask me. I will truly miss those phone calls or questions after school. Davin can not ask me and in his classrooms, there are usually so many adults, they do all of the stuff like that.