For most of my married life, Alan has traveled to some extent. He left to go to Navy boot camp a couple of months after we were married. I finished out my pregnancy and delivered Ashleigh without him:( Because God has seen fit to have these periods of absences in my life, I have come to appreciate some things about being without Alan for periods of time. The very best part of it....the homecomings! I love the homecomings!
Now, I have had many different kinds of homecomings. While our four children were little, Alan worked away four days a week for two years. So, every week, it was so exciting to watch my little children stand at the window and look for Daddy's car to get home. The weekends were so exciting because Daddy was home with us!
The granddaddy of all homecomings for our lives was when Alan was in the Navy and went on his second Med-cruise. He would be gone for six months. Ashleigh was 3 1/2 and Bethany was just about to turn 2. When I would look at the calendar and turn the pages of six months, I saw no possible way I could make it through that. As the day approached for them to ship out, I was pretty sure God was not going to let this happen. Surely He knew I couldn't handle it and would not send Alan away for such a long time and leave me alone with two little girls. Well, God did have Alan set out with his ship for six months. Were those six months hard? (Certainly not as hard as the wives who send their husbands to Iraq or Afghanistan for a year or more!) They were hard. It is hard when your four year-old little girl walks around the house with a picture of her as a newborn baby and her Daddy holding her. While Ashleigh was doing this, she was crying with this cry that comes from your gut saying, "I want my Daddy! I want my Daddy!" I thought my heart would break in two pieces.
But, at the end of all of that.....the HOMECOMING!! The day we had been living for and talking about for six months. The trash days had been counted down and the USS Virginia was on her way home!! New outfits were bought, hair styles were considered and then the day came. I got up hours and hours early just to be able to enjoy every minute of that day! The girls and I had a bag packed with snacks and had fixed ourselves up all pretty:) Our Daddy was coming home. As the ship came in, the men dressed in their dress blues all looked the same standing on the deck. Then, slowly they got closer and we could recognize our Daddy!! There is nothing that I have ever been through that compares to that. I could touch him. He was right next to me finally!! The girls were so happy to be in their Daddy's arms:)
Since that day, we have spent many many more days apart. As soon as Alan got out of the Navy, his job took him away for 3 1/2 months!! I had thought it was only the military that did that.
In Alan's job in Rochester, he traveled lots and would be gone for a week at a time or sometimes a bit more.
Now we are back to Alan traveling. I miss him lots while he is gone, but I can not help but like some parts of it and look forward to his homecomings. Tonight Alan will come home after being gone for four days. I will watch out the window while I continue making preparations for dinner and when I see those headlights, I will be so excited to see him!
Alan may read this and read other things into this post. He is going to tell me that I don't miss him and am glad he is gone during the week. That is not it at all. God has given us this in our lives. I choose to find the positive parts of it and enjoy them.
Thursday, February 11, 2010
Saturday, January 30, 2010
Boys vs. Girls
I frequently hear people talk about boys being so much easier to raise than girls. My answer is generally that it depends on the child and as genders go, they each have their challenges. They may not be the same challenges or come at the same time, but they come. Growing up is hard.
I am wondering if people who insist that boys are soooo much easier than girls have ever watched a boy try to become a man. I have found (in my own son and in other boys' lives) that this is a huge, difficult time of life. Right now I am praying for a young man who is very special to our family. He is at a similar point in his life that my son Cheney was in at this time last year. He has made some bad choices and there have been consequences that we presently don't know the extent of.
In my experience, girls are freer to show their emotions. They can cry and let those emotions out. It can look ugly, but they come out. After a certain age, boys are not really permitted to cry. This certainly was not something I had told my son, but I think boys catch on pretty quickly that by a certain age, crying does not look good for them socially, so they bottle it up. Eventually those emotions come out and I have seen it come out as anger or rage in boys. I know it did in my son and it was terrifying and painful to watch. Dealing with disappointments in themselves can leave them so angry. They need to be a "man" and yet they have so many insecurities and so many questions about what that should look like in their lives. And, of course, when they know they have things in their lives that are not living up to their own expectations of themselves.
So, as I think back to a year ago when my body was literally between my son and the front door as he desperately tried to get out of our house while I wondered if I would end up being hurt or if the police would need to be called, I will pray for this boy that we love so much. I will pray that he will walk out of his anger and into all that God has for him.
I am wondering if people who insist that boys are soooo much easier than girls have ever watched a boy try to become a man. I have found (in my own son and in other boys' lives) that this is a huge, difficult time of life. Right now I am praying for a young man who is very special to our family. He is at a similar point in his life that my son Cheney was in at this time last year. He has made some bad choices and there have been consequences that we presently don't know the extent of.
In my experience, girls are freer to show their emotions. They can cry and let those emotions out. It can look ugly, but they come out. After a certain age, boys are not really permitted to cry. This certainly was not something I had told my son, but I think boys catch on pretty quickly that by a certain age, crying does not look good for them socially, so they bottle it up. Eventually those emotions come out and I have seen it come out as anger or rage in boys. I know it did in my son and it was terrifying and painful to watch. Dealing with disappointments in themselves can leave them so angry. They need to be a "man" and yet they have so many insecurities and so many questions about what that should look like in their lives. And, of course, when they know they have things in their lives that are not living up to their own expectations of themselves.
So, as I think back to a year ago when my body was literally between my son and the front door as he desperately tried to get out of our house while I wondered if I would end up being hurt or if the police would need to be called, I will pray for this boy that we love so much. I will pray that he will walk out of his anger and into all that God has for him.
Tuesday, January 26, 2010
Trouble
"Let not your heart be troubled...."
My heart is troubled. We have a situation that we have been praying about for quite some time. It is becoming a desperate situation and we are at a lack of answers. On our knees...
My heart is troubled. We have a situation that we have been praying about for quite some time. It is becoming a desperate situation and we are at a lack of answers. On our knees...
Saturday, January 23, 2010
A New Doctor
Yesterday I took Davin to see a new doctor. The neurologist has insisted for two years that Davin must see this doctor. I was not sure why, but the neurologist was insistent every single time we saw her, so finally I got a hold of them and made an appointment. We took our x-rays and records with us. The doctor sat down and asked about Davin's history and then asked me how he could help me. You see, the problem was that I had no idea. I explained to him that I was hoping he could tell me how he might be able to help us. I wasn't sure what his expertise was. When I called to make the appointment, the receptionist asked why we were coming to see the doctor. I replied that I did not know. She asked if he was having trouble walking and I replied no. He is non-ambulatory. She asked if he wore MAFOs and I said yes. She asked if he was having problems with them. I said no. Hmmm... The neurologist insisted we see you, so that is why I am making the appointment.
So, the doctor explained that the neurologist was concerned that Davin was very tight. Well, she is always concerned that he is tight. Last appointment she was concerned he was tight and too thin. Really????? I had never noticed! You think he is tight??? And I thought he was chubby, not thin!! Okay, I am being smart. Every time we go to see the neurologist, she tries picking up his foot while he is in his wheelchair and stretching it out straight. You are never going to do that and have Davin NOT feel tight. She does not usually listen to me when I tell her how far his range of motion is, etc. I have come to accept this and just try to tell her and move on.
The new doctor seemed nice and gave me some things to think about. I am going to consider doing botox shots in Davin's arms right before his next round with intensive PT. That is the kind of thing this doctor does.
Although I thought the doctor seemed very knowledgable, I couldn't help but leave with somewhat of a bad taste in my mouth. When the doctor came in, he shook Davin's hand. That was good. However, that was the last time he spoke to Davin. Not to mention that he used phrases like "I have done this proceedure on someone of normal intelligence" and "kids who are older don't respond as well to PT". He made quite a few comments that I had to come home and talk to Davin about. If the doctor would have talked about these kinds of things, but had addressed Davin, I probably wouldn't have been as upset. I talk frankly in front of Davin. He didn't, though. I had to come home and tell Davin that even though the doctor has said that "Davin can't do anything for himself", that that wasn't a big deal and that is not what makes someone a great person. I had to talk to him about the fact that just because he may not know everything, he is still someone I am very proud of because he is trying to be the very best he can be.
My Dad was with us for the visit. My Dad thought the doctor was so good and I simply had to say that yes, he seemed to know what he was talking about, he only addressed Davin (his patient) one time and that didn't seem very good to me.
Maybe I should have said something. Maybe I should have asked him not to say those things in front of Davin or maybe the doctor just thought that our situation was so hopeless that Davin knew his life was horrible. Maybe that is just how doctors have to look at things because they just see the problems and not the people. I hope I never stop seeing people. I don't want to see their problems. I want to see their potential and their purpose. It is so easy for me to feel discouraged when a doctor asks me so many questions to find out if Davin can in any way help take care of himself and I have to answer no to every single one. In real life, though, when I am living with this boy and learning from him, I don't think about the fact that he can't brush his teeth by himself (okay, he could try, but they would not be clean;) or put his shirt on. I think about all the ways he is an amazing part of my family!
So, the doctor explained that the neurologist was concerned that Davin was very tight. Well, she is always concerned that he is tight. Last appointment she was concerned he was tight and too thin. Really????? I had never noticed! You think he is tight??? And I thought he was chubby, not thin!! Okay, I am being smart. Every time we go to see the neurologist, she tries picking up his foot while he is in his wheelchair and stretching it out straight. You are never going to do that and have Davin NOT feel tight. She does not usually listen to me when I tell her how far his range of motion is, etc. I have come to accept this and just try to tell her and move on.
The new doctor seemed nice and gave me some things to think about. I am going to consider doing botox shots in Davin's arms right before his next round with intensive PT. That is the kind of thing this doctor does.
Although I thought the doctor seemed very knowledgable, I couldn't help but leave with somewhat of a bad taste in my mouth. When the doctor came in, he shook Davin's hand. That was good. However, that was the last time he spoke to Davin. Not to mention that he used phrases like "I have done this proceedure on someone of normal intelligence" and "kids who are older don't respond as well to PT". He made quite a few comments that I had to come home and talk to Davin about. If the doctor would have talked about these kinds of things, but had addressed Davin, I probably wouldn't have been as upset. I talk frankly in front of Davin. He didn't, though. I had to come home and tell Davin that even though the doctor has said that "Davin can't do anything for himself", that that wasn't a big deal and that is not what makes someone a great person. I had to talk to him about the fact that just because he may not know everything, he is still someone I am very proud of because he is trying to be the very best he can be.
My Dad was with us for the visit. My Dad thought the doctor was so good and I simply had to say that yes, he seemed to know what he was talking about, he only addressed Davin (his patient) one time and that didn't seem very good to me.
Maybe I should have said something. Maybe I should have asked him not to say those things in front of Davin or maybe the doctor just thought that our situation was so hopeless that Davin knew his life was horrible. Maybe that is just how doctors have to look at things because they just see the problems and not the people. I hope I never stop seeing people. I don't want to see their problems. I want to see their potential and their purpose. It is so easy for me to feel discouraged when a doctor asks me so many questions to find out if Davin can in any way help take care of himself and I have to answer no to every single one. In real life, though, when I am living with this boy and learning from him, I don't think about the fact that he can't brush his teeth by himself (okay, he could try, but they would not be clean;) or put his shirt on. I think about all the ways he is an amazing part of my family!
Thursday, January 21, 2010
Faithful
I was listening to K-LOVE in the car today and they were talking about a website or something where people were being challenged to come up with one word that they wanted to desribe their lives for the next year. It could just be one word. I didn't have to think long about it. They mentioned many words that were so meaningful and good, but faithful came to my mind immediately. I want to be faithful....in so many ways. I want to be faithful to my God. When He asks me to do something that I don't think I am equipped to do, I want to be faithful to trust Him. I want to be faithful to be a good wife and go the extra mile even if Alan isn't giving me back as much as I would like him to. I want to be faithful to my kids. I want to be a solid, consistent example to them. I want to listen to them and pray for them faithfully. I want to be faithful in my ministries, even when I get tired. I want to be faithful to take care of my boy in the best way possible. I want to be a faithful daughter. I want to spend time with my parents and parents-in-law. It goes on and on. To me that word sums up so many areas in my life that I am constantly in need of working on. Faithful doesn't give the idea of doing something half-heartedly like I sometimes want to do things. Faithful puts in the time and energy needed to do the job right. Whatever it is.
So, what is your word???
So, what is your word???
Monday, January 18, 2010
My Asheigh Diane
My girls read my blog more than anyone else. Of course, their favorite is when I do a post about them. Looking back through my old posts, I never did a post just about Ashleigh, so even though it is not Thursday, I will post 13 things about Ashleigh Diane:)
1. I had Ashleigh when I was 18 years old and she is the baby that I first fell in love with. I absolutely loved being her mother.
2. Ashleigh had a very strong will and often had what we loved to call "episodes".
3. Ashleigh has adored her little sister from the minute she first laid eyes on her. The first day Bethany was home from the hospital, Ashleigh tried to share her french fries with her.
4. Ashleigh is a director for T&T club in Awana and loves leading the girls. She has a heart for troubled kids, especially.
5. Ashleigh has gone to Botswana, Africa and it was life-changing.
6. For Ashleigh, family is very important. She hates to miss a family function.
7. Ashleigh has been married for two years!
8. I could always count on Ashleigh to watch her younger brothers and sister if I needed her to. She loved to have them home with her while Alan and I went out.
9. Ashleigh is one of the most loyal people I have ever known.
10. Ashleigh loves working out.
11. She also loves dying her hair. One of the first things she did when she went away to college was to dye her hair.
12. Ashleigh has worked as a nanny for the last few years, although she does not presently have a job:(
13. Ashleigh is fun to be around! She brings a party wherever she goes. If Ashleigh is missing, things are not as lively as they are with her there.
14. I am proud of the young woman that she is. She is faithful to God, loves her husband and her family and has worked so hard on evening her strong will and letting God use it for Him.
1. I had Ashleigh when I was 18 years old and she is the baby that I first fell in love with. I absolutely loved being her mother.
2. Ashleigh had a very strong will and often had what we loved to call "episodes".
3. Ashleigh has adored her little sister from the minute she first laid eyes on her. The first day Bethany was home from the hospital, Ashleigh tried to share her french fries with her.
4. Ashleigh is a director for T&T club in Awana and loves leading the girls. She has a heart for troubled kids, especially.
5. Ashleigh has gone to Botswana, Africa and it was life-changing.
6. For Ashleigh, family is very important. She hates to miss a family function.
7. Ashleigh has been married for two years!
8. I could always count on Ashleigh to watch her younger brothers and sister if I needed her to. She loved to have them home with her while Alan and I went out.
9. Ashleigh is one of the most loyal people I have ever known.
10. Ashleigh loves working out.
11. She also loves dying her hair. One of the first things she did when she went away to college was to dye her hair.
12. Ashleigh has worked as a nanny for the last few years, although she does not presently have a job:(
13. Ashleigh is fun to be around! She brings a party wherever she goes. If Ashleigh is missing, things are not as lively as they are with her there.
14. I am proud of the young woman that she is. She is faithful to God, loves her husband and her family and has worked so hard on evening her strong will and letting God use it for Him.
Sunday, January 17, 2010
Another Wedding
In our house there is quite a bit of talk about weddings now. Especially when it is just Bethany, Davin and I. Alan is not quite as excited about the whole thing;) It is interesting to listen to Bethany describe what she would like to have for the ceremony and reception. It will be very different from Ashleigh's wedding just two years ago. Ashleigh's wedding was very traditional and formal. Bethany is going to have an outdoor wedding and reception and it will be much more casual. It will be great fun.
Bethany and Jeff are out tonight to meet with the couple that is going to do their pre-marital counseling. Tonight they are getting together to get to know each other before starting on their session. I pray it will be a blessed time and a time of thinking through and talking through lots of things.
Davin had a huge week last week. In the matter of two days, he had a sleep EEG (he had to stay up from 1am for this test), blood work, x-rays, went to the ortho doctor who had done his surgery, and got casted for new MAFOs. That was all just on Monday and Tuesday. I have to say, my Davin is just one of the easiest going people I have ever met in my life. On Monday morning, he got up at 1am and watched Little House on the Prairie through the night and was at the hospital in the morning for 5 hours and was such a trooper and was still smiling. I really learn from him all the time. It is amazing to me the attitude that he constantly has.
This week in Bethany's class, she got very upset. It has happened before. She is a social work major and so many times in classes, they end up discussing people who have disabilities. Unfortunately and sadly, the disabled people are not spoken of with respect or value. That was the discussion this week. They were talking about how even though people with disabilities don't have the same value..... These kinds of words cut like a knife when you have a name and face for the "people". I try to tell Bethany that it is just different when people don't know anyone personally. Somehow they are able to feel more valuable than someone they don't know. For Bethany and one other boy in her class who had an uncle with Down's Syndrom, "these people" are so much more. Sometimes Bethany says things and sometimes she just can't. One time, she had a college professor who was so ignorant on the subject, I wanted to go in and speak to her class to maybe shed some real light on the personal part of what they had been talking about. The teacher just did not get it and I wasn't ever able to do that. It was ashame. Bethany goes to a Biblical University, but that is no guarantee that people understand the value of everyone. It is still easier for us to think that being smart and capable are qualities that make us valuable. That is too bad. I wish those students coule meet my Davin.
Bethany and Jeff are out tonight to meet with the couple that is going to do their pre-marital counseling. Tonight they are getting together to get to know each other before starting on their session. I pray it will be a blessed time and a time of thinking through and talking through lots of things.
Davin had a huge week last week. In the matter of two days, he had a sleep EEG (he had to stay up from 1am for this test), blood work, x-rays, went to the ortho doctor who had done his surgery, and got casted for new MAFOs. That was all just on Monday and Tuesday. I have to say, my Davin is just one of the easiest going people I have ever met in my life. On Monday morning, he got up at 1am and watched Little House on the Prairie through the night and was at the hospital in the morning for 5 hours and was such a trooper and was still smiling. I really learn from him all the time. It is amazing to me the attitude that he constantly has.
This week in Bethany's class, she got very upset. It has happened before. She is a social work major and so many times in classes, they end up discussing people who have disabilities. Unfortunately and sadly, the disabled people are not spoken of with respect or value. That was the discussion this week. They were talking about how even though people with disabilities don't have the same value..... These kinds of words cut like a knife when you have a name and face for the "people". I try to tell Bethany that it is just different when people don't know anyone personally. Somehow they are able to feel more valuable than someone they don't know. For Bethany and one other boy in her class who had an uncle with Down's Syndrom, "these people" are so much more. Sometimes Bethany says things and sometimes she just can't. One time, she had a college professor who was so ignorant on the subject, I wanted to go in and speak to her class to maybe shed some real light on the personal part of what they had been talking about. The teacher just did not get it and I wasn't ever able to do that. It was ashame. Bethany goes to a Biblical University, but that is no guarantee that people understand the value of everyone. It is still easier for us to think that being smart and capable are qualities that make us valuable. That is too bad. I wish those students coule meet my Davin.
Saturday, December 26, 2009
My Thoughts on Mary
I have been thinking about Mary as I often do at this time of year. You know the Mary that I am writing about. The mother of Jesus. She started out as just an ordinary teenager and was given the huge task of raising God's son!
I think about her at this time of year because we had a couple of things in common. We were both told that we were going to be teenage mothers. We both felt the shame and embarassment of our situations. We both had to deal with the looks and glares of others. We both did not know how we were going to get through to the other end of the situation we found ourselves in, but we knew the one who was going to get us there.
Of course, we had some differences. My teenage pregnancy was due to my own disobedience and sin. Mary's was because God had found favor in her. She was chosen to carry the precious gift that would be the Savior of the world.
Even though we can think about so many wonderful things about Mary's job of carrying the Son of God, I believe Mary still dealt with the human things that I dealt with, too. When she dealt with them, though, they were unjustified. She had done no wrong. I had and maybe deserved every look, unkind word and whisper. Mary had not only done nothing wrong, but she had done something right to be so honored. But, did people really know that? Did they really believe it? When Mary saw other girls that she had grown up with on the streets, did they not whisper about her? Did they not ignore her or talk badly about her? When Mary's grandmother came over after finding out that Mary was with child, did her grandmother have the look of shame in her eyes as she looked at her granddaughter? What did Joseph's family think of the Mary that was engaged to their precious son? Did they believe that an angel had let her know that she would carry God's son even though she was still a virgin?
I am thankful for where my life has taken me for so many reasons. One reason is that maybe I can know just a little bit of what Mary went through in those first few months as she wrestled with her own fears and concerns while trying to keep her eyes on the goal.
I think about her at this time of year because we had a couple of things in common. We were both told that we were going to be teenage mothers. We both felt the shame and embarassment of our situations. We both had to deal with the looks and glares of others. We both did not know how we were going to get through to the other end of the situation we found ourselves in, but we knew the one who was going to get us there.
Of course, we had some differences. My teenage pregnancy was due to my own disobedience and sin. Mary's was because God had found favor in her. She was chosen to carry the precious gift that would be the Savior of the world.
Even though we can think about so many wonderful things about Mary's job of carrying the Son of God, I believe Mary still dealt with the human things that I dealt with, too. When she dealt with them, though, they were unjustified. She had done no wrong. I had and maybe deserved every look, unkind word and whisper. Mary had not only done nothing wrong, but she had done something right to be so honored. But, did people really know that? Did they really believe it? When Mary saw other girls that she had grown up with on the streets, did they not whisper about her? Did they not ignore her or talk badly about her? When Mary's grandmother came over after finding out that Mary was with child, did her grandmother have the look of shame in her eyes as she looked at her granddaughter? What did Joseph's family think of the Mary that was engaged to their precious son? Did they believe that an angel had let her know that she would carry God's son even though she was still a virgin?
I am thankful for where my life has taken me for so many reasons. One reason is that maybe I can know just a little bit of what Mary went through in those first few months as she wrestled with her own fears and concerns while trying to keep her eyes on the goal.
Monday, December 21, 2009
My Job Got Personal
I work very part-time for my brother-in-law. I help with the filing at his law firm. I go in whenever my schedule permits and I enjoy the people I work with. They always make me feel like I am doing them a huge favor by coming in and filing!
Today I was at work filing just like I usually do. I happened upon a document called a "Final Decree". I read part of it as I was trying to figure out how to file it. As I read, I realized this document had more meaning for me than I had known.
Alan and I were told that before Davin turns 18, we must become Davin's legal guardians. I had no idea this was something we had to do. Wouldn't we just continue caring for Davin like always because he is our son? Apparently, when someone is 18, they are an adult. If they are not able to make decisions about their care, etc, they need a guardian. We have been discussing this with my brother-in-law and as an attorney, he is going to help us do this in the next couple of weeks. I guess I had not thought too much about the legal aspect of this. I just thought it would be a judge seeing that we love our son and want to take care of him for the rest of our lives.
Well, as I read the document, the words that they used to describe this person.....it brought tears to my eyes. The document talks about how this person can not make decisions for themselves and it all sounded so hopeless. So, I am guessing that Davin's document will not say, "Davin is an 17 year-old young man who is loved and adored and needs his family's input to make decisions." I wish it was going to say that, but the words I read today, cut through me like a knife. The court was going to talk about my son that same way.
To tell the truth, this has been happening for Davin's whole life. I have received tons of papers that described what Davin can't do. Reading any of those papers would discourage me so much, especially in the beginning. However, as I got used to "the drill", I started getting the papers in the mail and tucking them away where I had them if I needed them, but I didn't have to give them the power to define who my boy was or was not. Davin is not just words on a paper. He is my son, a brother to three siblings who adore him, a grandson who lights up when he sees his grandparents, especially his grandfathers:) Davin gives so much and does not have speech. How much smarter is he than me to be able to communicate with so little??
I think the day we go through the court proceedings will be rough. We have been through rough days before. We have heard devastating news before. To quote my husband from the day that our son was diagnosed with cerebral palsy, "Heather, is he any different than he was yesterday?" I will remember those words on that day, too.
Today I was at work filing just like I usually do. I happened upon a document called a "Final Decree". I read part of it as I was trying to figure out how to file it. As I read, I realized this document had more meaning for me than I had known.
Alan and I were told that before Davin turns 18, we must become Davin's legal guardians. I had no idea this was something we had to do. Wouldn't we just continue caring for Davin like always because he is our son? Apparently, when someone is 18, they are an adult. If they are not able to make decisions about their care, etc, they need a guardian. We have been discussing this with my brother-in-law and as an attorney, he is going to help us do this in the next couple of weeks. I guess I had not thought too much about the legal aspect of this. I just thought it would be a judge seeing that we love our son and want to take care of him for the rest of our lives.
Well, as I read the document, the words that they used to describe this person.....it brought tears to my eyes. The document talks about how this person can not make decisions for themselves and it all sounded so hopeless. So, I am guessing that Davin's document will not say, "Davin is an 17 year-old young man who is loved and adored and needs his family's input to make decisions." I wish it was going to say that, but the words I read today, cut through me like a knife. The court was going to talk about my son that same way.
To tell the truth, this has been happening for Davin's whole life. I have received tons of papers that described what Davin can't do. Reading any of those papers would discourage me so much, especially in the beginning. However, as I got used to "the drill", I started getting the papers in the mail and tucking them away where I had them if I needed them, but I didn't have to give them the power to define who my boy was or was not. Davin is not just words on a paper. He is my son, a brother to three siblings who adore him, a grandson who lights up when he sees his grandparents, especially his grandfathers:) Davin gives so much and does not have speech. How much smarter is he than me to be able to communicate with so little??
I think the day we go through the court proceedings will be rough. We have been through rough days before. We have heard devastating news before. To quote my husband from the day that our son was diagnosed with cerebral palsy, "Heather, is he any different than he was yesterday?" I will remember those words on that day, too.
Friday, December 18, 2009
He Said Yes and then She Said Yes


After a very rough few months, it was time for some good news! Two weeks ago, we had a nice young man come to our house and ask to sit down and talk with Alan and I. He came to ask if Alan would give permission for him to ask Bethany to be his wife. (Wow, just to write those words is a little odd still!) After much discussion......many questions.....some requirements...Alan said yes. Alan told Jeff that he was free to ask Bethany.
So, Alan asked Jeff when he was thinking about asking Bethany. Jeff had the ring with him. At first, Jeff was thinking of doing it in the future, maybe sooner, okay, how about right then?? In the end, he went and took Bethany to a local park and pretended that the talk did not go well. Finally, he could not wait any longer and got down on his knee and asked Bethany Alyssa to marry him. SHE SAID YES!!!!
Friday, December 11, 2009
I Did the Easy Thing
Beginning a few weeks ago, Alan began working in Rochester, NY during the weeks. He comes home on the weekends for now. Eventually we will move up with him, but are waiting to see how some things shake down before deciding when that will be. I have been adjusting to not having him here to help me. Lots of times the evenings feel like another work day. I know all of the things I have to do for Davin and I just go through and check things off one by one. Somehow it just makes such a big difference knowing that Alan is not here to give Davin a bath or help me with carrying him. I have done the parenting thing by myself many times before, but I had all of my kids here and even though that caused more chaos, too, they were very helpful to me and their brother, too.
Since Alan has been gone, cooking has not been my strong suit. I have had grilled cheese more times than I can remember and I have also had bread and butter for dinner a couple of times. It just seems that by the time I make Davin's dinner (he doesn't generally eat the same things that I do) and get him fed, bathed, stretched, homework done, etc., I just don't feel like cooking. Not to mention, it is so weird to cook for one or two people.
Bethany is still here, but is generally not home at dinner time. She works evenings at Target and doesn't get home until after midnight now. She has come in and whispered to me asking what we had for dinner and I have had to tell her that I had bread and butter or grilled cheese!
A couple of nights ago, before Awana, I had made a big ceasar salad. No chicken in it. Just salad with bacon (which Bethany doesn't like). It seemed a good idea at the time. We were sitting at the table when Bethany asked me when the last time was that I made dinner. She said it was so discouraging when she would work all night and come home to find that there were no leftovers of any kind. Remember that I have not been cooking at all, so there are not any leftovers at all! I told Bethany to please realize how different things are for me without Dad here. This is the part where I realized I had really dropped the ball.....she reminded me that this had been finals week (which of course, I knew). She had not had a decent meal for all of her finals week. This may not seem horrible at first, until....I thought about what I had done just a couple of weeks before.
Cheney's college had sent home papers telling parents that we could order fruit baskets for our college students. The baskets would be delivered to them the Saturday before finals week and would be an encouragement to them as they begin their finals. This is not something odd for colleges. Bethany's college did the same thing, but I had never been able to afford to do this before this year, so Cheney will be the benefactor of the fruit basket. I was so excited as I was writing the check and sending it off to Wheaton. I imagined how excited Cheney would be and how he would have those snacks in his room while he was studying. I felt badly for the years that I wasn't able to do it for my girls.
However, I did not take advantage of the fact that this year I had the college student living with me and could encourage her myself!!! I had her living right here at home and could have made her meals and made sure she had snacks. What was I thinking? Instead, I was only worried about if Bethany will pass her class that she is nervous about and what it will mean if she doesn't. I dropped the ball. Not my finest moment as a mom. I did the easy thing. I wrote a check and sent it. I didn't take the time to invest in my college student who was right under my nose. In fact, I discouraged her. How disappointing to come home after working a long night and have to make peanut butter and jelly every night.
So, I guess I need to spend more time looking for the harder thing to do. Instead of thinking about how difficult my situation is and focusing on that, I need to look to meeting the needs of others. I do hope the lesson has been learned for me. Thankfully she has one more class to take in January.....
Since Alan has been gone, cooking has not been my strong suit. I have had grilled cheese more times than I can remember and I have also had bread and butter for dinner a couple of times. It just seems that by the time I make Davin's dinner (he doesn't generally eat the same things that I do) and get him fed, bathed, stretched, homework done, etc., I just don't feel like cooking. Not to mention, it is so weird to cook for one or two people.
Bethany is still here, but is generally not home at dinner time. She works evenings at Target and doesn't get home until after midnight now. She has come in and whispered to me asking what we had for dinner and I have had to tell her that I had bread and butter or grilled cheese!
A couple of nights ago, before Awana, I had made a big ceasar salad. No chicken in it. Just salad with bacon (which Bethany doesn't like). It seemed a good idea at the time. We were sitting at the table when Bethany asked me when the last time was that I made dinner. She said it was so discouraging when she would work all night and come home to find that there were no leftovers of any kind. Remember that I have not been cooking at all, so there are not any leftovers at all! I told Bethany to please realize how different things are for me without Dad here. This is the part where I realized I had really dropped the ball.....she reminded me that this had been finals week (which of course, I knew). She had not had a decent meal for all of her finals week. This may not seem horrible at first, until....I thought about what I had done just a couple of weeks before.
Cheney's college had sent home papers telling parents that we could order fruit baskets for our college students. The baskets would be delivered to them the Saturday before finals week and would be an encouragement to them as they begin their finals. This is not something odd for colleges. Bethany's college did the same thing, but I had never been able to afford to do this before this year, so Cheney will be the benefactor of the fruit basket. I was so excited as I was writing the check and sending it off to Wheaton. I imagined how excited Cheney would be and how he would have those snacks in his room while he was studying. I felt badly for the years that I wasn't able to do it for my girls.
However, I did not take advantage of the fact that this year I had the college student living with me and could encourage her myself!!! I had her living right here at home and could have made her meals and made sure she had snacks. What was I thinking? Instead, I was only worried about if Bethany will pass her class that she is nervous about and what it will mean if she doesn't. I dropped the ball. Not my finest moment as a mom. I did the easy thing. I wrote a check and sent it. I didn't take the time to invest in my college student who was right under my nose. In fact, I discouraged her. How disappointing to come home after working a long night and have to make peanut butter and jelly every night.
So, I guess I need to spend more time looking for the harder thing to do. Instead of thinking about how difficult my situation is and focusing on that, I need to look to meeting the needs of others. I do hope the lesson has been learned for me. Thankfully she has one more class to take in January.....
Saturday, October 17, 2009
Finally
I finally got some motivation and had a very productive day today. My dear friend Tina, encouraged me that maybe this is a time of rest for me. I can embrace that thought, but it is unfortunate that it happens to coincide with the time that Alan has been without a job. Therefore, every day that I am here just hanging out and reading or watching Little House on the Prairie, Alan is watching me and I am pretty sure he has decided that this is what I have always done. He just wasn't usually home to watch me:) So, today, I finally got up and got lots of stuff done. Dinner was in the crock pot by 10 am, I whipped up a batch of sugar cookies and they are even iced and sprinkled already. We did some cleaning, laundry and all of that good stuff. Davin also got fed two times already. There have been some Saturdays when I suddenly realized that I had forgotten to feed Davin lunch! But, not today:)
Therapy is over now for Davin, so Monday will be the start of a "regular" week. Davin will go back to school and I will go back to work. Also, Alan's job search has been fruitful lately. He has a good potential job and is traveling next Monday to see the new office. It sounds like they would like him to come work for him, if he thinks he can stand doing the job. Alan seems up for the challenge. At this point, it sounds like the job would potentially move our family, but maybe for just one or two years and then we would come back to NJ. For now, our game plan (provided they really do offer the job to Alan) is for Alan to move up to Rochester, NY for approximately 8 weeks and see what he thinks of the office, etc. At that point, we would decide if we would move up there or Alan would just work there for a time and we would stay here. A short-term move (as we have done when the kids were little) is not so easy now. There are many services, etc, to set up for Davin and we will just have to be prayerful about what is best for Davin and for our family. Bethany has decided that even if we move, she will stay here and probably stay with family or stay in our house here. So much to pray about. God just keeps telling me to stay on my knees!
Therapy is over now for Davin, so Monday will be the start of a "regular" week. Davin will go back to school and I will go back to work. Also, Alan's job search has been fruitful lately. He has a good potential job and is traveling next Monday to see the new office. It sounds like they would like him to come work for him, if he thinks he can stand doing the job. Alan seems up for the challenge. At this point, it sounds like the job would potentially move our family, but maybe for just one or two years and then we would come back to NJ. For now, our game plan (provided they really do offer the job to Alan) is for Alan to move up to Rochester, NY for approximately 8 weeks and see what he thinks of the office, etc. At that point, we would decide if we would move up there or Alan would just work there for a time and we would stay here. A short-term move (as we have done when the kids were little) is not so easy now. There are many services, etc, to set up for Davin and we will just have to be prayerful about what is best for Davin and for our family. Bethany has decided that even if we move, she will stay here and probably stay with family or stay in our house here. So much to pray about. God just keeps telling me to stay on my knees!
Tuesday, October 13, 2009
An Encouragement
Davin is in therapy presently. Therapy means driving for an hour each way and then sitting and helping while Davin does three and a half hours of therapy each day. He goes Monday through Friday. This time it is for two weeks. This is our second week. Davin is doing awesome. I think if someone asked me to work out for that long (and it is without a break unless his hands are getting purple or something and we need to give him a couple of minutes;), I would just collapse or certainly whine quite a bit. Davin does it like a trooper. I am always amazed at him. He loves his therapists and we have certainly gotten to know each other over the years that we have spent going to this therapy. God has been so gracious to provide the funds for him to receive this therapy and I am happy to take him.
One of the highlights of our weeks at the Rehab Center is seeing another girl who has CP and her mom. During my almost 17 years now (Yikes!) of having a disabled child, I have not had many friends who also have disabled children. I am not sure why, but I have not. My friends have certainly been a huge support for me and have loved Davin very much. However, getting to spend some time with another mom who deals with the same issues is just a blessing of a different kind. Anyone who has a child can relate to parenting issues, but I have always thought that the world that you walk into when you have a disabled child is just that, a bit of a different world. There are different rules, different timelines and certainly many, many, many more people interested in giving your opinion about how to best take care of your child. That in itself brings a whole different aspect to parenting. If I disagree with the professional (as I presently am on one issue), are they going to report me to Child Protective Services?
It made a good day at therapy just a little bit brighter getting to see this "therapy friend". I love the way the Lord provides what we need just when we need it.
One of the highlights of our weeks at the Rehab Center is seeing another girl who has CP and her mom. During my almost 17 years now (Yikes!) of having a disabled child, I have not had many friends who also have disabled children. I am not sure why, but I have not. My friends have certainly been a huge support for me and have loved Davin very much. However, getting to spend some time with another mom who deals with the same issues is just a blessing of a different kind. Anyone who has a child can relate to parenting issues, but I have always thought that the world that you walk into when you have a disabled child is just that, a bit of a different world. There are different rules, different timelines and certainly many, many, many more people interested in giving your opinion about how to best take care of your child. That in itself brings a whole different aspect to parenting. If I disagree with the professional (as I presently am on one issue), are they going to report me to Child Protective Services?
It made a good day at therapy just a little bit brighter getting to see this "therapy friend". I love the way the Lord provides what we need just when we need it.
Friday, October 09, 2009
Where Have I Been?
For those of you who have not totally given up on me, thank you. I have not been around. I have not blogged in months, nor have I even checked in for quite a while. This summer has been rough. There have been challenges that have been big. I have been driven to my knees multiple times. I have found that is where God wants me. He wants me reaching for His Word like my life depends on it. He wants constant communication with Him. It is a good place to be. There are still many challenges and they can not be shared in detail on here. I will have to think of another way to share on my blog. Maybe share more about having a child with a disability or maybe share more about the stage of life where your children are leaving the nest. We will see.
I will tell you about one HUGE change in our house. Cheney Alan is at college now. He left in the middle of August and that has been a huge adjustment for everyone. Our house is so quiet, it is hard to take. We find ourselves wondering what in the world to do with our time. Frankly, I sit around a lot. I can not seem to get out of this speed. I used to have so much to do, I rarely had time to take a break. Now it is hard to get motivated because I have such a slow schedule. I am working more and that is good. I know I will get used to the slow schedule and will take on more projects, but probably not today:)
I will tell you about one HUGE change in our house. Cheney Alan is at college now. He left in the middle of August and that has been a huge adjustment for everyone. Our house is so quiet, it is hard to take. We find ourselves wondering what in the world to do with our time. Frankly, I sit around a lot. I can not seem to get out of this speed. I used to have so much to do, I rarely had time to take a break. Now it is hard to get motivated because I have such a slow schedule. I am working more and that is good. I know I will get used to the slow schedule and will take on more projects, but probably not today:)
Tuesday, June 23, 2009
Class of 2009
Tuesday, June 09, 2009
Two Kids, 8 Wisdom Teeth and Lots of Ice
This past week has been all about wisdom teeth. Last Wednesday, Cheney had his four wisdom teeth taken out. Bethany followed him five days later and had hers removed yesterday. My couch has been full of one Hester or another with a bag of ice held to one side or the other of their face for almost a week now. I am so thankful that I have a flexible boss and can be home with the kids while they are recovering. Even though they are pretty grown up, I know they appreciate having me nearby to get them new ice or find them something to try to eat.
Sunday, May 24, 2009
Happenings at the Hester House


Time is marching on awfully fast lately. In the last month, Cheney has been to South Africa and back, been to Orlando for his senior class trip, gone to his senior formal and Davin has completed three weeks of intensive physical therapy. All of the events were exciting in lots of different ways. Cheney's trip to South Africa seemed incredible. What an experience! He was able to share with some people, bond with a boy at an orphanage, and visit a gaming reservation. Davin's three weeks of PT was amazing! I keep waiting for him to stop progressing since he is older now. This time amazed me and amazed his therapists. It is hard to describe it to you because he did not start walking or talking or anything like that, but my boy was putting different things that he has learned to do over the years together. He was deciding to do things without being asked to do them I(and let's face it, sometimes begging...). Davin was keeping himself in a hands and knees position and then keeping his balance to stand up on his knees. Wow! Davin really didn't have balance just a few years ago. He is pretty awesome. I think Davin has a different work ethic now that he is older and that has helped him, too. We are no longer begging him with games, etc, but he is just doing what he needs to do. Cheney's formal was very exciting, too. Davin made the final decision concerning Cheney's tux and it was fun to help him get ready to go.
Okay, the big news coming up is that Cheney has decided where he is going to college!!!!!!!! I can not tell you what a struggle this has been. Should he go far, should he stay, and on and on. We were waiting on the financial info for one more school (his top choice) and when that finally came back after quite a bit of time, it seemed clear what God had for Cheney for the fall. The sad part is that in August, we will be driving our son to Illinois and dropping him off. He will be attending Wheaton College. The good news is that Bethany has moved back home and will be living here from now on since she will be doing her four day placement next semester and it is local. So, I am trading one for one!
The other big news in our house is that my Bethany is bringing home a boy for us to meet on Thursday night. Okay, I guess you have to call someone who is 25 a man:) Anyway, Bethany has not been one to date. She has always known what she is looking for and was pretty quick to rule a guy out. It seems that this guy is a bit different and it has been fun to hear her talk about him. Since she has never been boy-crazy as a teenager and has waited so patiently, we have never heard her talk about someone like this. Fun stuff. Of course, Alan is waiting to see what he thinks when he meets him. He also let Bethany know that if he doesn't approve, the deal is off. You have to love having a Dad who cares:)
As we go through all of these exciting things, I am reminded of two families who have had their lives turned upside down. I continue to pray for Brett and Paige and all they have before them.
Monday, May 04, 2009
Mom, can you?.......
My kids have often times called me and asked, "Mom, can you.....?". Lots of times it involved making some kind of food for something at school. Today Cheney called me after school and asked if I could make tacos for his Spanish IV class for tomorrow. My mind started running. Would chips and salsa be what he had in mind? I considered sending that with him and he wouldn't have complained, but instead thought through what I had in my house and came up with most of the fixings for chicken quesadillas. (Sorry, I am pretty sure I am spelling that wrong.) I had Cheney call a couple friends to see if they could fill in the empty spots for me. We got our part done and it's all packed up and ready to go for tomorrow.
Every time I do something for Cheney this year with school, I think about how his school years are almost over. I am so thankful for every time that my kids called and asked, "Mom, can you....?" I'm glad they knew I would do it. I'm glad they knew they could feel free to ask me. I will truly miss those phone calls or questions after school. Davin can not ask me and in his classrooms, there are usually so many adults, they do all of the stuff like that.
Every time I do something for Cheney this year with school, I think about how his school years are almost over. I am so thankful for every time that my kids called and asked, "Mom, can you....?" I'm glad they knew I would do it. I'm glad they knew they could feel free to ask me. I will truly miss those phone calls or questions after school. Davin can not ask me and in his classrooms, there are usually so many adults, they do all of the stuff like that.
Friday, April 10, 2009
South Africa
Okay, I must have had something wrong when I typed the blog address last time. The team has arrived safe and sound and will keep us updated through the blog. Here is the address:) http://tkcssa09.blogspot.com Please let me know if that doesn't work. And, yes, Martha, wouldn't it be cool if Chey and Nate one day met up on the mission field?
This has been a super busy week with getting Cheney ready, having the Awana Grand Prix, having a Duffers for Davin meeting, and trying to get some work done, too. Now Bethany is home for Easter weekend and we are with just our blond kids. Since they are our pretty quiet ones, it is pretty quiet around here. The only time it gets kind of loud is when Bethany makes Davin mad and he screams at her. You all know Davin is non-verbal and he is pretty easy-going for the most part. However, lately, there are a couple of things that Bethany does, that make him scream and I mean SCREAM! The first thing is if she takes his yogurt. I will get out two yogurts for him and while I was feeding him his first one, Bethany wanted to take the other one and have some. Davin was not going for that. Bethany did not think he should be so greedy, but in all fairness, she had tacos and he knows he can not eat those. He only had those two yogurts. I might be a little stingy about that, too. Yesterday, Davin brought home a big bag of candy that his bus driver gave him. Well, Bethany decided to get into that just to get a reaction and it worked. Davin screamed again, although I don't think he was as angry as the whole yogurt thing. Besides, he can share his candy. Different thing altogether. It is funny to see him figure out new ways to get his point across and I think it's very smart of him.
This has been a super busy week with getting Cheney ready, having the Awana Grand Prix, having a Duffers for Davin meeting, and trying to get some work done, too. Now Bethany is home for Easter weekend and we are with just our blond kids. Since they are our pretty quiet ones, it is pretty quiet around here. The only time it gets kind of loud is when Bethany makes Davin mad and he screams at her. You all know Davin is non-verbal and he is pretty easy-going for the most part. However, lately, there are a couple of things that Bethany does, that make him scream and I mean SCREAM! The first thing is if she takes his yogurt. I will get out two yogurts for him and while I was feeding him his first one, Bethany wanted to take the other one and have some. Davin was not going for that. Bethany did not think he should be so greedy, but in all fairness, she had tacos and he knows he can not eat those. He only had those two yogurts. I might be a little stingy about that, too. Yesterday, Davin brought home a big bag of candy that his bus driver gave him. Well, Bethany decided to get into that just to get a reaction and it worked. Davin screamed again, although I don't think he was as angry as the whole yogurt thing. Besides, he can share his candy. Different thing altogether. It is funny to see him figure out new ways to get his point across and I think it's very smart of him.
Thursday, April 02, 2009
What Have I Been Up To?
Cheney's senior year is flying by! Tomorrow morning he leaves with his choir for a competition in Washington, D.C. Then, on Wednesday, he heads to South Africa with a team from his school. They are going on a missions trip and I am so excited for him to have this opportunity. He will be gone until the 20th. Our house will be quiet, but my prayeris that Cheney's life will be forever changed by this trip. I think getting so far out of your comfort zone and putting your faith into practical practice can do a great work in your life. I am excited for him to go and excited for him to be able to come home and hear all that he has experienced. If you want to follow their trip, you can go to tkcssa.blogspot.com. Cheney worked hard on the website, so check it out.
I know the next few days will be busy as we prepare for him to leave. I see one more Target run in our future to get the few last items on our list. Then, the rest is out of my hands, but I guess it always was anyway.
I know the next few days will be busy as we prepare for him to leave. I see one more Target run in our future to get the few last items on our list. Then, the rest is out of my hands, but I guess it always was anyway.
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