I was fixing (that is from you, Tina) to write a comment on my last post, but realized I would rather write another entry instead.
Thank you to my friends who commented already on my last post. For all of Davin's life, I have realized that I am being watched. Not by the CIA, well, at least I hope not. But, by other people. All the time. I bet Sherri can relate to this. I bet Kelli can relate, too. We have children who are different. People can tell they are different by looking at them and so they watch us. They may not know someone with a serious disability and the way they learn about them is by watching me in the grocery store with my son. They watch me talk to him. They watch me pull his wheelchair from the side, so I am not walking behind him, but beside him. They watch how I explain things to him, although they may not think he can understand. I am constantly aware that I am an advocate for people with disabilities even though I have never signed up to be.
With each of my children came different challenges and I was ready and prepared to meet each one of them. My challenges with Davin are a bit different. That involves responding to people's looks and questions. I don't always like this part of my job, but it is part of my job. Like it or not. My hope is that when people watch me or one of my family members with Davin, they don't see a lack of anything. They see an abundance of many things. They don't see a chair. They see a boy. They see a huge personality and someone who likes to get into some trouble;)
That is why yesterday's post was so difficult for me. I don't always want people to see the harder side of my life. I don't want anyone to think that having Davin was less of a thrill than having their child who is "normal". (I REALLY hate that wording) I want them to know that Davin has so much to offer and that it is my privilege to care for him. I guess with Davin, I have to work a bit harder to have people see that sometimes, so I try not to complain and talk about the bad side as much.
However, there are hard things about having a child who is non-ambulatory. I don't like to admit it, but it is true. Maybe it is good to talk about it sometimes, especially with the people in my life that already see Davin for who he is. I didn't have to convince any of you:)