Wednesday, July 13, 2011

The Same is GOOD!

Davin and I drove down to NJ yesterday and had his neuro appointment at 8 am this morning.  Now we are already back "home" in NY.  Thank you to all who prayed for our appointment.  I had such peace going to the appointment.  After I spoke with the neuro on the phone about a month ago, I was left wondering if Davin did not actually have CP, but had something that was changing.  Today I had all of my questions answered.

I have never had neurologist that I liked.  Never.  Until today:-)  Today we went in expecting to see the doctor that I spoke with on the phone, but instead we saw a nurse practitioner who was amazing.  She answered all of my questions.  She went over the results of the MRI with me bit by bit and explained everything.  She asked me a couple of different times if I had any additional questions.  She sat next to Davin and rubbed his arm every once in a while, looked in his eyes and smiled at him.  Davin was acting like wild thing, but it was funny. 

Today I learned the underlying cause for Davin's CP and for the severity of his CP.  He has a condition that happened when his tiny little brain was first developing.  The NP said that I probably didn't even know I was pregnant when all of this happened.  There is some possibility that genetics is involved.  The NP is going to speak with the geneticist and let me know if she feels we should dig further. The only reason it matters at all is just for our other children to know.  Finding out anything else does not change anything for Davin. 

And that, my friend, is the good news!!  He is the SAME!!  The things that his MRI showed are not new things.  They are things that happened and all explain his CP.  I am assuming the MRIs are different or this information is different than it was 18 years ago when Davin was diagnosed and had his only other MRI. 

The other cool thing that God did through this is that He let me off the hook.  When other people would talk about kids with disabilities they might say things like "God doesn't make mistakes".  I, of course, know this to be true, but  never felt like it applied to our situation.  Generally CP is a brain injury that happens before, during or right after birth.  When Davin was diagnosed, the wonderful (I jest;-) neurologist told me that there was no reason to investigate why Davin has CP because it would just make someone feel guilty.  Can you guess who took on that guilt?  Yup, that was me.  I was always afraid I had someone hurt Davin or allowed him to be hurt.  Today I am freed of that.  Thank you Jesus. 

By the time I got to the appointment today, I knew that if Davin's condition was getting worse or if it was staying the same, I had the same huge God walking beside me and everything was in His hands.  He has equipped me for the journey so far and He will continue.


Melanie L said...

I'm glad that the NP will speak to the geneticist, and if there could be an issue with your children's children, they will have that knowledge well ahead of time. Just *knowing* is sometimes so helpful. So many mysteries about how we are formed.

Some doctors are just stupid. I have an NP I see once a year, and I think she is wonderful!

I'm glad today went well.

Anonymous said...

Praise God!! Great news! It's an amazing feeling when the spirit of God takes over in a situation...He gave you His peace and everything fell into place. (Glad Davin was able to be there too and not feel uncomfortable) Thank you for sharing...Pam

Martha said...

Burdens lifted are always a blessing. No matter what, you have a beautiful boy and a wonderful son who is a blessing to more people than you could ever imagine.